Category Archives: Fundraising

Happy Birthday Edie!


What a night we had yesterday celebrating Edie’s 4th Birthday.

Thank you to everyone who attended, I’m sure you will all agree that the night just wouldn’t have been as successful as it was without the help from some of the best suppliers and entertainers!

We can’t say enough how appreciated they all are, here’s just a little thank you to everyone involved:

Levara Properties , A2z Accountants & DSA Media – our sponsors for the evening, who supported us throughout this whole event.

Maddison j creations – what a wow factor you provided us with by completely transforming the marquee into the most beautiful setting perfect for Edie’s birthday ball. Everyone commented on how stunning it all looked.

GoEvents – ran the evening for us controlling all sound, media, fundraising, and stage management.

Can Do Cupcakes (Wirral) and Its Sew You for creating the most amazing cake we have ever seen! Louise and Clare also support us at all of our events providing us with Edie’s cupcakes

Ben and Laura at Probooths for the fab selfie mirror

Simon Peter Photography for capturing our night.

Colin at MediaStir for filming the night.

**Now onto our entertainment:

Claire Simmo there is no one else we could of had host our special evening! You where absolutely fantastic!

The amazing Ray Quinn – what a performance.

Marc Kenny as always you run and help organise theses nights, as well as perform for us.

The guys from Madison we loved your party set at the end with Marc Kenny, I don’t think we could have fitted any more on the dance floor

Tricia McTeague provided us with a set throughout our meal – the most unreal voice!

Dani at Winterworks Entertainment provided us with unreal silks performance, our red carpet lady and fire artist on arrival

The fantastic MD Productions and Girl Talk UK – we loved both performances!

Thankyou to Hillbark Hotel for having us at their stunning venue.

And a big thankyou to absolutely everyone who donated auction and raffle prizes, and our fantastic volunteers on the night who helped with all the fundraising!

Were so excited to see the professional photos and video we had done of the evening – but heres just a few photos of the evening for now!

Postponed: Greg’s Sponsored Climb

Due to storms being forecast on and around Snowdon at the weekend we have reached the decision to postpone Greg’s Sponsored Climb until the weather improves (date to be confirmed but possibly mid-September).

Greg is understandably upset but determined that the climb will still go ahead at a later date.

The conditions on Snowdon will be far too dangerous and treacherous for anyone to climb and none of the Spider-Ede team would want or expect Greg to put himself in any danger.

We’re sure you will all support Greg with this decision.

On behalf of Edie’s family we would like to thank Greg for all that he is doing and the amazing amount he has raised so far. We are also truly grateful to you all for the generous donations which have been made to the Spider-Ede Appeal through sponsorship for this climb which will, of course, be carried forward to the new date

Weekly Roundup 3rd June

Hi all, it’s our weekly round-up post! As always, we want to say a huge thank you to everyone who is mentioned below, for those who have attended/supported and for everyone who has made a donation no matter what size. We appreciate you all ❤️💙
Check out our upcoming events to see what’s going on in the next week and beyond.
Last Sunday, young Liam Reay did a sponsored walk over 12 miles. He raised just over £584! Well done Liam!
Yesterday we had a Vale Park Music Festival up in Wallasey. Great music, lots of fun, and despite the poor weather it raised £438. A big thank you to Claire Sim and all who volunteered, plus Christopher Locke for organising the music and Ragamuffin and guests for performing.
Also, Steve Allen ran the Abersoch 10k with his family whilst his wife Helen Allen, and her sister Nikki were cheerleading and helping us spread awareness with Spider-Ede t-shirts on. Steve and Helen’s son, Will, sadly passed away from DIPG in December 2016 aged 14, and have since been fundraising in his memory to help other children #willpower
Today, Genting Casino held their poker tournament in aid of our appeal. Thank you to all involved and to those who attended.
Young Isabelle, just 6 years old, did a sponsored crab catch today as well, raising over £250! Well done Isabelle, such a wonderful way to raise awareness and sponsorship!
Also today, Jazmin Sneddon walked up Mount Snowdon in a Spider-Man costume in the hot sunshine! Well done Jazmin for not just raising funds but also spreading more awareness for us to those who you met along the way.
This past week, Katharine Hughes walked 96 miles on the West Highland Way in Scotland, flying the Spider-Ede flag and collecting donations along the way. A huge thank you to Katharine for raising awareness so far away and also of course for the collections made. She’s raised just over £705 so far! You can show your support for her at
Also thanks this week to
Thingwall Primary School’s bake sale before half term – £180
St Andrews C/E School – £243
St Joseph’s Upton School – £642
K G Lancaster – £475
Mr J Evans – £100
Combermere No 605 Benevolent Fund – £250
Mr Kevin P Conlan – £1,000
Accounting and Commercial Solutions Ltd – £100
Eli Lilly Speke Operations Workplace Trust – £500
Euro Garage Green Lane – £31.30
Co-op Teehey Lane – £38.81
Iconic Upton – £31.05
Jaime & Yvonne Slawson Collection – £103
The Mockbeggar Hall Wetherspoon Moreton
The Coffee Co, Bebington
Next week we have Bingo night featuring Captain America, who has been practising the Floss! 😉 Tickets are still available, £10 per person, drop us a message if you want to buy any.
Also today, Rachael Rowlands, David Hibbert and Lucy Rowlands are driving from Edinburgh to Rome, roughly 2000 miles each way, in an old London Taxi as part of a Rust2Rome rally with 40 other cars. The criteria was that the car could not be worth more than £500 on the road! Spare a though for them driving this non air conditioned car considering the weather forecast this week! and please show your support by sponsoring them at
Good luck to Sue Fowler and Harry Walch who are swimming in the Great North Swim, and Scott McCready who is doing an Ironman competition, all in aid of Edie next weekend.
Finally, a couple of future ticketed events if you want to get in before they all go!
23rd June, Love 80s, St Joseph’s Social Club Birkenhead –
1st July, Spider-Ede Sunset Cruise, Seacombe Terminal –
Apologies if we’ve missed anyone out. Please let us know in the comments below. If you are holding a fundraiser or wish to, please email so that we can send you our ePack and get you on our events calendar.
Or text EDIE03 £(amount up to 10) to 70070


Heroic Endeavours

The Hero's Ascent: Greg's Sponsored Climb to the Summit of Mt. Snowdon

We’ve had some heroic efforts for our Edie lately. Richie Hellon walking 300 miles in 5 days to raise over £4k and John Hammond doing marathon after marathon raising similar amounts, before tackling the gruelling Marathon des Sables for Edie. These people stand out because of the extremes that they go to.

Another man that is standng out as pushing himself to his extremes is Gregory Weston. This amazingly brave man suffered a devastating brain injury in 2011. He spent a month in a coma, during which time doctors had suggested turning off his life support. He survived, spending the following months in critical care, then a high dependency unit, and more than a year after that in a chair.

He fought for the next few years to regain the use of his legs, and he continues to fight to regain their full use. He has been left quite dramatically disabled as a consequence of a simple fall, but he’s never allowed that to keep him down. His positivity has also led to him helping other disabled people at the hospital where he was a patient.

Now Greg wants to help Edie, and he needs support to do so. Please take a look at the poster below, and visit Greg’s JustGiving page, leave him a message, or sponsor him; your encouragement will be enormously appreciated. You can find out additional information on Greg’s Facebook Event Page.

The Hero's Ascent: Greg's Sponsored Climb to the Summit of Mt. Snowdon (Poster)

Weekly Roundup 20th May

The Spider-Riders

Hi all, it’s our weekly round-up post to say thank you to those who have held an event or participated in a sponsored event for us and to let you know what you can look forward to next week! As always, we want to say a huge thank you to everyone who is mentioned below, for those who have attended/supported and for everyone who has made a donation no matter what size. We appreciate you all ❤️💙

We are adding more and more events to our calendar so please take a look on this to see what’s going on in the next week on our Upcoming Events.

This week we held our second #Bake4Edie day on Thursday. We want to say thank you to those who participated in this for us or offered a place for us to sell cakes including Clare Hazler, Lauren Mutch, Louise Woods, Leasowe Leisure Centre, The Acorn in Higher Bebington, Town Lane Infant School, New Directions Education Wirral, The Madhouse in Bebington, Yvonne Ahern, Lucy Moss, Michelle Parson and Jenni White. We’re still awaiting a number of totals but the total so far stands at over £600!

On Friday evening, the Ivy Casey cup was held at Tranmere Rovers. 2 teams played a thrilling match. We want to say thank you to the donations made and collected and also the sponsorship also collected by these players. If you want to donate to their efforts you can do at . We also have photos from the match on Flickr.

Saturday evening saw a Poker tournament held at St Mary’s Cricket Club. Everyone was in good spirits and had a good time. Thank you to the organisers for hold this in aid of the appeal and also to those who attended. £100 was raised for the appeal!

Today we had our volunteers out in force at the Rock ‘n Roll Marathon in Liverpool rattling their buckets and collecting donations, alongside the Spider-Riders who led the runners out by bike and to help raise awareness of our appeal. Thank you to all of our volunteers for shaking those buckets, the cyclists and also to Paul McGregor, Colin O’Hanlon, Sammie Dalton, Steve Copeland, Liz Buckley and Joanne Dickenson for running today for the appeal.

Additional thank yous this week go to
Ford Social/Leisure Centre – £150
Ron Stading – £600 birthday donations
Freddie’s Bar – £61
Houlihans – £132
Madhouse – £50
Baby Ballet Collection – £160

Our main event of note for the forthcoming week is the family day for Edie at The Swan in Prenton. With lots of fun things for kids to do and hopefully this good weather will stick around, it’s sure to be a fun day for all!

The Way Fitness is also holding their Fitness-athon on Saturday from 7am, and there are still some slots free to join in the fitness classes being held (in return for a donation to the appeal). So please check the event for further details and how to book.

Apologies if we’ve missed anyone out. Please let us know in the comments below. If you are holding a fundraiser or wish to, please email so that we can send you our ePack and get you on our events calendar.

Donate online:
Or text EDIE03 £(amount up to 10) to 70070

Weekly Roundup 29th April

Spider-Ede Appeal - Charity Race Night

It’s our weekly round up! As always, we want to say a huge thank you to everyone who is mentioned below, for those who have attended/supported and for everyone who has made a donation in person, on JustGiving or via sponsorship, no matter what size, we appreciate you all ❤️💙

Check out our events to see what’s coming up soon on our Upcoming Events calendar.

On Tuesday and Wednesday, the young dancers from Complete Works had their show up at the Floral Pavillion in New Brighton. Donations were collected for the appeal. Well done to all of the dancers and participants and thank you for collecting on our behalf.

Friday evening saw a charity race night held down in London, arranged by Stuart McClaughlin. Everyone had a brilliant night and over £7000 was raised! Thank you to all who attended and donated and a big thank you to Stuart.

On Saturday morning, the Snowdonia Superheroes climbed Mount Snowdon in aid of the appeal. A brilliant achievement by all and we’re so thankful for this. If you wish to show your support you can donate to their fundraising page at

We then had the long awaited Casino night at the Poulton Victoria Club in Wallasey. A night of fun and gambling (with pretend money!) and live music from Tequila! Thank you to all who attended, Tequila for the music and Kirsty for holding this event. Over £2000 has been raised!

On Saturday evening we also collected a £500 cheque from Buffs at the Tuebrook British Legion. Nanny Ann and Sophie headed over there to collect the cheque and also join in with their Bingo! We want to say thanks to all and a special mention to Tommy who chose the appeal and is also in hospital awaiting a triple bypass, we wish him well and for a speedy recovery.

On Sunday morning, Joe Baker ran the Chester half marathon for Edie. He did brilliantly and you can show your support for him on his fundraising page at

We also had a group of superheros complete the Yorkshire 3 peaks challenge today. You can donate to their efforts at

Also thank yous go out to the following for collections and raffles
Rumbling Tums Cafe £160.74
ESSAR CWS Cake Sale £71.00
Dreams Hair & Beauty £72.32
Wirral Rugby Club £104.64
Europa Pools £45.86
Cock & Donkey £33.09
DW Sport £66.01
Hungrys in Little Sutton
Gill Hughes and daughters £200
Linda Reeve and Joan Janvier have also raised £315 with their ongoing time spent on sales of donated items.

Next week we have
Friday – Charity Karaoke Night at the Sportmans Arms

Also good luck to our couch to 5k team who are running the Spring Liverpool 5k on Saturday morning, keep an eye out for Joanne, Emily, Beci and Sarah, if you’re there!

Apologies if we’ve missed anyone out. Please let us know in the comments below. If you are holding a fundraiser or wish to, please email so that we can send you our ePack and get you on our events calendar.

Donate online:
Or text EDIE03 £(amount up to 10) to 70070

Weekly Round – 1st April

Hi all, it’s our weekly round-up post to say thank you to those who have held an event or participated in a sponsored event for us and to let you know what you can look forward to next week! As always, we want to say a huge thank you to everyone who is mentioned below, for those who have attended/supported and for everyone who has made a donation no matter what size. We appreciate you all

We are continually adding events to our calendar once they’re confirmed or we know about them so please take a look on this to see what’s going on in the next week – Upcoming Events.

On Tuesday we had the highly anticipated Charity Evening at the Gladstone Theatre, featuring a whole host of singers and comedians including Charlie Landsborough, and hosted by Ricky Tomlinson. The evening was a great success! Edie’s Nan and Grandad, plus friends and family, attended this and thoroughly enjoyed themselves and were very overwhelmed with what everyone did for Edie. A huge thank you to Jimmy King who set it all up, Ricky Tomlinson, Charlie Landsborough and everyone else who took part and our volunteers who rattled those buckets collecting donations as well.

Tuesday evening also saw a Neon walk being held over in Gayton Primary School and co-ordinated by Nicky Ellis, a joint event for Lucy’s Pineapple Fund at the Spider-Ede appeal. They raised an amazing £1060 and a lot of fun was had by all. A huge thank you to Nicky for sorting this out and including our appeal.

On Thursday the sponsored swim across the Mersey run by AquaSafe concluded. We want to say a big thank you to AquaSafe for arranging this, the swim instructors for co-ordinating the swims and to the children who took part and of course well done for what you’ve all achieved!

Higher Bebington Sports College had a cinema running for the last day of term and raised £500 for the appeal! Thank you to Louise Lord who set this up and to all involved and those who attended as well.

The Mecca Bingo Birkenhead held a fundraising evening for Edie, with Bingo and entertainment from Tiny Tim and their own comedian Phil, who left Mecca to take up a career in comedy. Tequila provided fantastic live music. A total of £1091 was raised. A huge thank you to those involved, Mecca Bingo and Nanny Eileen for arranging it!

Despite the weather forecast and bad weather Thursday night, Good Friday turned out to be a lovely sunny day and our Golf tournament at Prenton Golf club still went ahead with a large group of golfers including pro golfer Paul Waring. Thanks goes to Joe Sephton who arranged this along with Prenton Golf club for hosting the event for us.

The amazing walk by Richie Hellon came to an end on Friday, he walked for almost 300 miles from Tranmere, Wirral, to Dover Athletic’s stadium. He suffered swollen and blistered feet, a slight panic on Wednesday night when he couldn’t check into his hotel, but he arrived on Friday around 1pm. Sadly the match was then postponed due to the pitch being waterlogged, however he still managed to get back home on the supporter’s bus and has so far raised an amazing £3475!!

Joseph Reilly’s lego competition raised over £261 and the lucky winner was Claire Jenkins, who guessed with the exact amount of pieces, 796! A huge thank you to Joseph for building the house and running the competition.

Today we’ve had three events running. The Rose & Crown pub in Wallasey had a Spider-Ede Fundraising day, and the Woodchuch Hotel also laid on an Easter Ede event. Both had a great turnout, and have evening events on so still going! We hope anyone attending is having a great time 🙂 Thank you to all involved for arranging these events, and also the volunteers who gave up part of their Easter Sunday to help out plus those that baked cakes and donated raffle prizes for it as well.

Tenpin in Cheshire Oaks also held another Bowling for Edie event today, raising funds and putting on entertainment for the children and families who attended. A big thank you to all involved.

This week we’ve also seen collections, raffles and final totals from fundraisers:
Co-ops fundraisers – £1757
Gala Bingo – £310 (in addition to a previous week’s collection)
Wickes Birkenhead – £213
Spider-Ede Bracelets – £220 (in addition to an already amazing amount raised!)
St Andrews C/E School non uniform day – £243
Sapphire Dance School, Ellesmere Port raised at least £800
Raeburn Primary has raised over £1700
Natalie Hooton’s Easter Raffle raised £347
Hairdressing by Claire – £200 raised from a raffle
Wirral Grammer Boys raised approximately £1850 holding a non uniform day for both Lucy and Edie
Wirral Tae Kwon Doe raised £110
Cambridge Road school in Ellesmere Port had a non uniform day and raised £155

Next week, on Friday 6th we have a Bingo night with raffle being held at the British Legion in Higher Bebington. There are still spaces/tickets available to please get in touch with us if you’d like to join in with the fun (with Captain America as the bingo caller you know it’ll be a fun night!)

On Saturday we have an attic sale taking place in New Ferry village hall, get on down and grab a bargain. There will also be Spider-Ede tote bags and kids t-shirts available to buy plus hand made items and of course refreshments will be available.

There is also a fundraiser taking place in Wallasey at Marlowe Road Church, 1-3pm, with a cake sale, raffle and tombola. You get free entry into the raffle if you bring a cake!

In the evening there is a Race Night being held at The Clarence Hotel in Wallasey. With live music and plenty of entertainment from 7pm onwards.

Also, for the month of April, Wirral council has nominated our appeal as their charity of the month as has the Baltic Secret Gardens. We want to say a huge thank you to all involved!

Apologies if we’ve missed anyone out. Please let us know in the comments below. If you are holding a fundraiser or wish to, please email so that we can send you our ePack and get you on our events calendar.

Donate online:
Or text EDIE03 £(amount up to 10) to 70070

Spider-Ede Appeal Charity Evening at the Gladstone Theatre

Charlie Landsborough and his band

On Tuesday 27th of March the Gladstone Theatre in Port Sunlight, Wirral, hosted a charity evening in aid of the Spider-Ede Appeal. Compared by the brilliant Ricky Tomlinson, the evening starred Birkenhead Born Country Legend Charlie Landsborough and his band, and featured actor and comedian Tony Barton along with singers Joe Wall and Kearra Bethany. The evening was a huge success, spreading awareness for Edie whilst bringing a lot of enjoyment to a packed theatre.

Grandad Chris summed up his thoughts, saying “so humbling what these people are doing for little Edie, not just the stars on stage but also the backstage people, the girls with the buckets, and of course our mate Jimmy King!”

Chris also took a few photos of the evening, a selection of which can be found below. To see more view the full gallery on Chris’ Flickr account.

Marathon Madness Completed

28701619_1680041792077041_522075600863843271_oJohn and Dave,

We thank you both for going out of your way travelling 3 different countries and pushing yourselves to your limits.
We thank you for taking something you enjoy and using it to make a difference!
For inspiring others and opening their minds.

You are true heroes, selfless and beautiful.

John completed 4 marathons in 4 days in 3 countries and Dave joined him for the last 2. This was all for the 6 Uk children with DIPG travelling to Mexico for treatment.

In the Uk, there is simply no hope for our children, we are told to go and make happy memories as inevitably they will die. Well we are not prepared to give up on our beautiful little souls, there is hope, in Mexico they are trying all they can to help our children and come up with an answer.
Our Uk government currently does not support or fund this treatment and so we have to do it ourselves.

That is when people like John & Dave step in, the aim of this Marathon Madness was to raise awareness and gain some publicity. But John also decided they would raise some much needed funds for us all along the way! He set the target at £2000 and we are so thankful to all that donated as that target has been exceeded and his crowdfund page is now on £2500!!! 🙌🙌🙌

Thank you for all that got involved, running alongside John & Dave, words of encouragement, donations this all means so much to us.
John and Dave don’t ever stop being you! We look forward to seeing what you come up with next John as we know you too well to think this will be the last 💪💪💪

A big thank you to the businesses who sponsored John & Dave even though the pair were more than prepared to fund it themselves (reluctant to accept money for their travel & accommodation)

14 degrees down –
Flo Gas –
Pearl Dragon Restaurant –
DG Technology –
Proform Group –

All our love, Ashleigh, Steve and all of our Uk DIPG families here in Monterrey.

#cure4cam Cameron, Waringstown
#tousaveczoé Zoé, Southampton
#teamkaleigh Kaleigh, Essex
#helpluke Luke, East Lothian
#helplucy Lucy, Wirral
#fight4edie Edie, Wirral

John Hammond’s Marathon Runs

John Hammond

Tomorrow, John Hammond, who has already run 42 miles in his Stadium run just a couple of weeks ago to help raise funds for Edie, is embarking on a new challenge. He has decided that to raise awareness of DIPG around the UK he is going to run a marathon in the home town of each of the other 4 children from the UK, who are currently receiving treatment in Mexico. John is well know on the Wirral and has had amazing support and it’s time to spread this awareness further.

John Hammond
These marathons are not being spaced out however, they are being run over 4 days, in 3 different countries!

All money raised will be split between the 6 children currently fighting DIPG in Mexico.

  • The Spider-Ede Appeal – Edie May Molyneux – #fight4edie
  • Lucy’s Pineapple Fund – Lucy Moroney – #helplucy
  • Kaleigh’s Trust – Kaleigh Lau – #teamkaleigh
  • Cure4Cam – Cameron Finnegan – #cure4camfund
  • Help Luke – Luke Stewart – #helpluke
  • Association Princesse Zoé – Zoé Donneaud – #tousaveczoé

The Marathons

John will be starting his first marathon on Thursday 15th March at 10am in Waringstown, Northern Ireland. Starting from Camerons school, Brownlow Integrated College, Craigavon, Cameron’s Dad, some family friends and some of the children at Cameron’s school will be joining John at some part of the run.

John will then fly back to Liverpool Airport and drive down to Southampton to run a Marathon in Zoe’s home town on Friday 16th March at 10am. There is no particular route planned at the moment.

Saturday 17th March brings an early start, 7.30am! John will be joined by his friend Dave Huyton and they will both be running in Kaleigh’s home town, starting from the Premier Inn Buckhurst Hill and joining in with the Hackney Marshes Parkrun around 9am.

Finally a long drive up to Scotland for both John and Dave, where they will be running their marathon in Luke’s homeland, East Lothian. This will be a 10amstart with no route planned at the moment.

John continues to raise awareness for both Edie and Lucy, who are both from John’s home, Wirral. As he already does so much to support both campaigns and recently ran a 42 mile run from Manchester to Wirral via Liverpool, it was decided in order to raise more awareness outside of Wirral he would run his marathons for all children in the 4 other areas. Plus the decision to miss out Wirral is because we know that the people of Wirral will support John no matter where he runs!

With Thanks

John and all 6 families would like to thank the below companies for sponsoring John in his 4 marathons for 6 children;

Thank you also to:

14 Degrees Down for printing John and Dave’s marathon t-shirts.

A big thank you to Steve Smith (Part of The Spider-Ede Appeal fundraising team) for lending John his car to make the journey from Liverpool to Southampton, London, Scotland and back to Wirral.

Finally, we also want to take this opportunity to say a huge thank you to John himself, who is selflessly donating his time and energy to help raise awareness of all 6 UK children currently receiving treatment in Mexico.

To show your support you can sponsor John on his JustGiving page.

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