Tag Archives: spider-ede

Spider-Ede’s Birthday Ball

Taking place on Friday 12th October, 2018, the Spider-Ede Appeal is presenting our biggest event yet! To celebrate Edie’s 4th Birthday we will be holding Spider-Ede’s Birthday Ball at the prestigious five star Hillbark Hotel in Frankby, Wirral.

Arrival is from 6pm and the evening will be hosted by Radio City 2’s Claire Simmo.

Entertainment is by X-Factor & Dancing On Ice star Ray Quinn, and also Tricia McTeague, and LUMA.

There will be other special guests and surprise entertainment on the evening.

Attendees will enjoy a 3 course meal and wine with their meal.

Tickets are no longer available to purchase for this event.

Spider-Ede's Birthday Ball - Friday 12 October 2018

Heroes Assemble at Liverpool Comic Con for Edie

Xt-Sup on the Albert Dock

We’d like to thank the members of the Stand Up Paddling group, Xt-Sup, who made Liverpool Comic Con take notice when they paddled across the Albert Dock in Superhero Costumes, with T-Rex in tow. Events like this catch the attention and can quickly become talking points, so we’re very grateful that they used this opportunity to raise awareness of the Spider-Ede Appeal. The following story of the event is by them, and the accompanying photos are by Chris Stading.

Iron Man on the Albert Dock

Last year as Comic Con 2017 approached we thought about having a paddle in superhero costumes. It was all a bit last minute and four of us ended up going, with Ironman being a particular hit with the younger members of the crowds down at the docks. It was good fun and nice to see smiles on people’s faces and we decided we should do it again.

This year the idea was suggested in good time and off the back of a popular group paddle in February there were loads of people up for getting their costumes on for a visit to Liverpool and a paddle around the docks this year!

We came across the Spider-Ede appeal on Facebook and decided our paddle was the perfect opportunity to have a collection and do our small bit to contribute and turn our superhero themed day out in to a show of support for the super Spider-Ede.

Superheroes and villains do not worry about trivial things such as wind and rain and 35 of them ignored the forecast and arrived at Liverpool Watersports Centre to take to the water on Saturday morning.

T-Rex Messing About on the Water

With a slight tailwind it was easy going to carry us all into Dukes dock next to the arena where the 2018 Liverpool Comic Con was in full swing. Heads were turned as passers-by were expecting to see costumed characters on dry land and not floating by with a T-Rex in tow! A quick turn around and we headed back through the Salthouse dock and into the centre of the Albert Dock to take in the surroundings while curious shoppers and tourists could get a closer look at us all before we paddled back to where we started at the Watersports Centre.

Another great paddle and massive thanks to everyone who came from all over to take part (special thanks to Craig and Bethan who had a 4.30am start to travel up from South Wales!). You all helped raise money for the Spider-Ede appeal and have some fun looking silly on the water.

As of now we have raised £170 from the collection on the day and online donations, so a massive thank you to all who donated and shared the appeal and helped spread awareness.

You can view more of Chris’s photos from this event on his Xt-Sup Flickr Gallery.

We’re off to Mexico!

You may have read earlier in the month that we had a letter from Mexico confirming that Edie had been accepted onto their DIPG treatment program. This is amazing news and really gives us hope. We are trying to get plans in place to leave during the first week of January as we need to be there by the 13th before our place is lost and we have to reapply. However, we also felt that those who have already donated or considering donating understand that this is just the first step, the first consultation and it’s only the start of what will be a long and costly year ahead of us.

We have been overwhelmed by the generosity of those who have already donated, those who have already held events to help raise funds, raffle prize donators and more. Every person who has even just shared our story has helped to raise awareness and potentially found us another donor. Our current total stands at just over £45,000, which is 15% of our total target.

However, as amazing as this has been, the fund raising doesn’t end here. We will be in Mexico for potentially up to a month and then having to return monthly for further treatments. Each of these cost a lot of money. Our first bill is approximately $32,000 which is just under £24,000. That doesn’t include the cost of last minute flights to Mexico, accommodation for all of us whilst out there, the urgent Passports that we’ve had to sort out for us and the children, plus everything else that comes with moving to another country at a moment’s notice.

So we still need your help. We appreciate that it’s the most expensive time of year however one of our fund raising avengers (our close network of family and friends who will be running everything and continuing to co-ordinate fund raising plans/events whilst we are away) has come up with a plan.

Edie’s 300

Edie’s 300 is a group of people who are willing to pledge £10 a week (just over £43 a month) and set up a standing order, to send this money into our bank account and help to lay the foundations of our future fund raising. We know people would love to donate and we realise that we can’t raise so much money so quickly, however this would reduce the monthly average needed to be raised and ease the pressure on our amazing team of avengers and everyone else who are trying to help us.

If you would like to join our 300, please visit Edie’s 300 page and complete the form. Bank account details will then be forwarded for setting up a standing order.

Fund Raising Events

We still need fund raising events to go on! We have a few already set up to go ahead and more are being planned, however we still need more! We have set up a fund raising with a list of ideas and will be adding poster templates, our standard posters, different logo options for sticker printing and/or t’shirt printing. If you are planning a fund raising event please also contact us and let us know the details. We can then add it to our list of upcoming events, help publicise it and maybe even help out if at all possible.

Anything you can do is absolutely amazing and truly appreciated from the very bottom of our hearts and that’s not just from Edie’s immediate family but her extended family and friends. You’re all superheroes in helping us to save our little superhero.

Santa Came Early!

This evening we were visited by Santa in his sleigh! His friend, John, heard of our appeal and made his own appeal. To give Edie, her sister Niamh and brother Lenny, a mountain of presents and a very magical visit. Over 50 presents were delivered by Santa to us this evening. The children were certainly excited and we are overwhelmed by the generosity of those who donated a present for this.

Santa with Spider-Ede, Wonder Niamh and Iron-Len

Spider-Man Comes to Visit!

Spider-Man and Edie

This evening our little Spider-Ede had a suprise visit from Spider-Man! We’d just like to say a big huge Spider-Ede thank you to the real Spider-Man, who took time off from his day job of saving the citizens of New York from the Green Goblin to visit our Justice League of Avengers core team! Spider-Ede, Wonder Niamh, Iron Len, Bat Mum, Super Dad and Ellie Dog of Mischief had a fantastic time meeting you today!!

Spider-Man with Edie and Ashleigh


Niamh & Edie

My beautiful little girl, 3 years old, lights up any room just by walking into it. She’s funny, loving, caring and just absolutely adorable!

We’ve just found out that she has inoperable brain cancer! Why? Just why?? How is that fair?? This cancer, up to now, has been a death sentence and any treatment only makes it come back quicker and more aggressive.

I’d give anything to take it away from her, sadly nowhere in the UK or Europe can, her best chance of survival lies in Mexico and the pioneering treatments they’re doing there. 2 children in as many months have now been classed as NED or No Evidence of Disease! This has to be a good enough reason to get there?!

We are trying to raise as much as we possibly can, as quickly as we can.

Anything you can give or do to help, however small the effort or donation could make all the difference.

A massive thank you to all who can help us!!

Make a Donation

The news that rocked our world

Edie with Dr Ranj

30th November 2017 – Steve and I had the most heartbreaking news we could ever imagine. After months of headaches my three year old daughter Edie was referred for an MRI with suspect migraines. The result of these scans came back that Edie has a 3.4cm tumour in her brain stem. We then went straight to Alder Hey hospital in Liverpool, where she had a more advanced MRI scan on the Friday. She still has to go through more tests but the specialists believe it could be a Diffuse Intrinsic Pontine Glioma (DIPG). This is a rare cancer that effects children and so far is untreatable, incurable and fatal.

5th December 2017 – We returned to Alder Hey and Edie got to meet Dr Ranj filming for CBeebies. We spoke to a number of specialists and were left with a lot to think over. After meeting Lucy from Lucy’s Pineapple Fund, we also contacted the Instituto de Oncologia Intervencionista in Monterrey, Mexico, a group of doctors specialising in DIPG treatment who asked for a copy of Edie’s brain scans and a video of her in person.