Tag Archives: spider-ede

We’re off to Mexico!

You may have read earlier in the month that we had a letter from Mexico confirming that Edie had been accepted onto their DIPG treatment program. This is amazing news and really gives us hope. We are trying to get plans in place to leave during the first week of January as we need to be there by the 13th before our place is lost and we have to reapply. However, we also felt that those who have already donated or considering donating understand that this is just the first step, the first consultation and it’s only the start of what will be a long and costly year ahead of us.

We have been overwhelmed by the generosity of those who have already donated, those who have already held events to help raise funds, raffle prize donators and more. Every person who has even just shared our story has helped to raise awareness and potentially found us another donor. Our current total stands at just over £45,000, which is 15% of our total target.

However, as amazing as this has been, the fund raising doesn’t end here. We will be in Mexico for potentially up to a month and then having to return monthly for further treatments. Each of these cost a lot of money. Our first bill is approximately $32,000 which is just under £24,000. That doesn’t include the cost of last minute flights to Mexico, accommodation for all of us whilst out there, the urgent Passports that we’ve had to sort out for us and the children, plus everything else that comes with moving to another country at a moment’s notice.

So we still need your help. We appreciate that it’s the most expensive time of year however one of our fund raising avengers (our close network of family and friends who will be running everything and continuing to co-ordinate fund raising plans/events whilst we are away) has come up with a plan.

Edie’s 300

Edie’s 300 is a group of people who are willing to pledge £10 a week (just over £43 a month) and set up a standing order, to send this money into our bank account and help to lay the foundations of our future fund raising. We know people would love to donate and we realise that we can’t raise so much money so quickly, however this would reduce the monthly average needed to be raised and ease the pressure on our amazing team of avengers and everyone else who are trying to help us.

If you would like to join our 300, please visit Edie’s 300 page and complete the form. Bank account details will then be forwarded for setting up a standing order.

Fund Raising Events

We still need fund raising events to go on! We have a few already set up to go ahead and more are being planned, however we still need more! We have set up a fund raising with a list of ideas and will be adding poster templates, our standard posters, different logo options for sticker printing and/or t’shirt printing. If you are planning a fund raising event please also contact us and let us know the details. We can then add it to our list of upcoming events, help publicise it and maybe even help out if at all possible.

Anything you can do is absolutely amazing and truly appreciated from the very bottom of our hearts and that’s not just from Edie’s immediate family but her extended family and friends. You’re all superheroes in helping us to save our little superhero.

Santa Came Early!

This evening we were visited by Santa in his sleigh! His friend, John, heard of our appeal and made his own appeal. To give Edie, her sister Niamh and brother Lenny, a mountain of presents and a very magical visit. Over 50 presents were delivered by Santa to us this evening. The children were certainly excited and we are overwhelmed by the generosity of those who donated a present for this.

Santa with Spider-Ede, Wonder Niamh and Iron-Len

Spider-Man Comes to Visit!

Spider-Man and Edie

This evening our little Spider-Ede had a suprise visit from Spider-Man! We’d just like to say a big huge Spider-Ede thank you to the real Spider-Man, who took time off from his day job of saving the citizens of New York from the Green Goblin to visit our Justice League of Avengers core team! Spider-Ede, Wonder Niamh, Iron Len, Bat Mum, Super Dad and Ellie Dog of Mischief had a fantastic time meeting you today!!

Spider-Man with Edie and Ashleigh

Why?

Niamh & Edie

My beautiful little girl, 3 years old, lights up any room just by walking into it. She’s funny, loving, caring and just absolutely adorable!

We’ve just found out that she has inoperable brain cancer! Why? Just why?? How is that fair?? This cancer, up to now, has been a death sentence and any treatment only makes it come back quicker and more aggressive.

I’d give anything to take it away from her, sadly nowhere in the UK or Europe can, her best chance of survival lies in Mexico and the pioneering treatments they’re doing there. 2 children in as many months have now been classed as NED or No Evidence of Disease! This has to be a good enough reason to get there?!

We are trying to raise as much as we possibly can, as quickly as we can.

Anything you can give or do to help, however small the effort or donation could make all the difference.

A massive thank you to all who can help us!!

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