Today we flew past the £95,000 mark. This means we are almost a third of the way to our estimated target of £300,000*. Please help us get there!
On Wednesday evening (24th January), Edie is due to have a follow up appointment at the hospital in Mexico to check on how she has responded to the treatment, the side effects suffered and how she is in herself. From there the doctors will decide how to proceed and when the next treatment appointment should be.
So let’s see if we can get to the £100,000 milestone before this appointment. It would give us a such a boost and a show of support to take us into the appointment knowing everyone is still behind us every step of the way.
To donate directly please visit our Spider-Ede Appeal Campaign Page.
(* Please note this is only an estimated target for the minimum number of treatments needed)
The first of hopefully many video diaries has just gone live on our YouTube channel. It features Ashleigh and Edie talking about how things have been, how the first treatment for Edie went and what they’re up to in between the hospital visits.
I spent a little while looking over this photo and deciding if I should post it or not. I’ve decided I should. Whilst it’s not distressing to look at for an outsider, this is the epitome of heartbreak for us. Spending a day in the hospital, whilst they sedate your baby to see if her tumour has grown. This is the reality of DIPG, it’s known for its aggression it’s known for its mercilessness. How could this happen to someone so small, innocent and fragile? How is that fair? It‘s not, it’s not fair to us, and it’s certainly not fair to Edie May. 😭
Please, please keep sharing our cause, please keep flooding your news feeds with her face, please keep telling anybody who will listen, and shout it to those who won’t. This is a life, a life that could be saved with the help of other people. In fact, it’s not just one life, it’s many. By helping save Edie, you’re saving our whole family, not just Ashleigh and Steve, not just Niamh and Lenny, but all of the Grandparents, Aunties, Uncles, Cousins and even friends that she means the world to. Please keep our mission going, help us with every fibre of your beings. You’ll be saving lives. Thank you