I spent a little while looking over this photo and deciding if I should post it or not. I’ve decided I should. Whilst it’s not distressing to look at for an outsider, this is the epitome of heartbreak for us. Spending a day in the hospital, whilst they sedate your baby to see if her tumour has grown. This is the reality of DIPG, it’s known for its aggression it’s known for its mercilessness. How could this happen to someone so small, innocent and fragile? How is that fair? It‘s not, it’s not fair to us, and it’s certainly not fair to Edie May. 😭
Please, please keep sharing our cause, please keep flooding your news feeds with her face, please keep telling anybody who will listen, and shout it to those who won’t. This is a life, a life that could be saved with the help of other people. In fact, it’s not just one life, it’s many. By helping save Edie, you’re saving our whole family, not just Ashleigh and Steve, not just Niamh and Lenny, but all of the Grandparents, Aunties, Uncles, Cousins and even friends that she means the world to. Please keep our mission going, help us with every fibre of your beings. You’ll be saving lives. Thank you
Taking place on Friday 12th October, 2018, the Spider-Ede Appeal is presenting our biggest event yet! To celebrate Edie’s 4th Birthday we will be holding Spider-Ede’s Birthday Ball at the prestigious five star Hillbark Hotel in Frankby, Wirral.
Arrival is from 6pm and the evening will be hosted by Radio City 2’s Claire Simmo.
Entertainment is by X-Factor & Dancing On Ice star Ray Quinn, and also Tricia McTeague, and LUMA.
There will be other special guests and surprise entertainment on the evening.
Attendees will enjoy a 3 course meal and unlimited wine.
Tickets cost £85.00 per person and can be paid for in either one payment, or 3 installments.
To book to your ticket(s) please select one of the following two options:
Spider-Ede’s Birthday Ball Full Payment Option
Full payment for tickets to Spider-Ede’s Birthday Ball.
Spider-Ede’s Birthday Ball Installment Option
Initial payment for buying tickets to the Birthday Ball in installments.
This option is only available from 1st-31st July – this option allows you to reserve your ticket at an initial cost of £35. There will then be 2 additional installments, paying £25 at the end of August and £25 at the end of September. Please note that installments are non-refundable, and all installments must be made prior to the event in order to receive your ticket.
An evening of music and a chance to dance the night away to all the tracks you hear on Love 80’s radio! With freebies up for grabs, a prize for the best 80’s gear and a raffle with some ‘money can’t buy’ prizes as well.
When: Saturday, 23rd June 2018 from 7.30pm until late
Where: St Joseph’s Social Club, Birkenhead
Cost: £10 per person which includes a chip butty!
Tickets can be purchased via EventBrite (please note there is an additional charge imposed by EventBrite) or directly from St Joseph’s Social Club.
Love Bongo’s Bingo? Then you will love 🧀 Cheesy Bingo on Saturday 14th July at the Poulton Vics in Wallasey! Play Bingo! Dance to Cheesy Music and win Cheesy Prizes!
If you fancy joining us for a good night out then you can get your tickets online from Skiddle. Tickets cost £10 plus £1.75 card fee.
Please note, you must be 18 or over to attend.
Warning! Smoke & strobe lighting effects will be in use
On 30th November 2017 we heard the words no parent should have to hear…
On the 30th November 2017 we heard the words no parents should have to hear…
This week we are 6 months on from that awful day and we wanted to share with you our journey from the beginning. For those that have been with us from the start and those that have joined us along the way, we are so thankful to have you fighting with us.
Join us on 1st July aboard the Mersey Ferry for an evening of live music with Marc Kenny and the Beatles tribute act, Paperback Writers.
The cruise will depart from Seacombe ferry terminal at 7.30pm and take approximately 2 hours. There is a fully licensed bar onboard as well.
Tickets are £20 per person and are available from the Spider-Ede Cruise Page on the Mersey Travel Booking Site.
Please note the live music performance area is on the upper deck which is accessible by stairs only.
Are you going on holiday? Or even a day out somewhere different?? 🗺
Can you help us by wearing your Spider-Ede Tshirts? Spread the word and tell the world! ✈️🌍 🚗🌍 🚂🌍 🚢
If you haven’t yet got yourself a tshirt you can order one from the wonderful Nikki at 14 Degrees Down.
How far can Spider-Ede get?
You can post your photos on Facebook, Twitter or Instagram, make them PUBLIC and use #SpiderEdeTee so that we can see them, and let us know where in the world you are 💪💪
Alternatively you can send your photo direct to: firstname.lastname@example.org