What we’re fighting for

Edie getting ready for her MRI scan

I spent a little while looking over this photo and deciding if I should post it or not. I’ve decided I should. Whilst it’s not distressing to look at for an outsider, this is the epitome of heartbreak for us. Spending a day in the hospital, whilst they sedate your baby to see if her tumour has grown. This is the reality of DIPG, it’s known for its aggression it’s known for its mercilessness. How could this happen to someone so small, innocent and fragile? How is that fair? It‘s not, it’s not fair to us, and it’s certainly not fair to Edie May. 😭

Please, please keep sharing our cause, please keep flooding your news feeds with her face, please keep telling anybody who will listen, and shout it to those who won’t. This is a life, a life that could be saved with the help of other people. In fact, it’s not just one life, it’s many. By helping save Edie, you’re saving our whole family, not just Ashleigh and Steve, not just Niamh and Lenny, but all of the Grandparents, Aunties, Uncles, Cousins and even friends that she means the world to. Please keep our mission going, help us with every fibre of your beings. You’ll be saving lives. Thank you

Edie getting ready for her MRI scan

Spider-Ede’s Birthday Ball

Taking place on Friday 12th October, 2018, the Spider-Ede Appeal is presenting our biggest event yet! To celebrate Edie’s 4th Birthday we will be holding Spider-Ede’s Birthday Ball at the prestigious five star Hillbark Hotel in Frankby, Wirral.

Arrival is from 6pm and the evening will be hosted by Radio City 2’s Claire Simmo.

Entertainment is by X-Factor & Dancing On Ice star Ray Quinn, and also Tricia McTeague, and LUMA.

There will be other special guests and surprise entertainment on the evening.

Attendees will enjoy a 3 course meal and unlimited wine.

Tickets cost £85.00 per person and can be paid for in either one payment, or 3 installments.

To book to your ticket(s) please select one of the following two options:

Spider-Ede’s Birthday Ball Full Payment Option

Full payment for tickets to Spider-Ede’s Birthday Ball.

£85.00

Spider-Ede's Birthday Ball

Spider-Ede’s Birthday Ball Installment Option

Initial payment for buying tickets to the Birthday Ball in installments.

£35.00

This option is only available from 1st-31st July – this option allows you to reserve your ticket at an initial cost of £35. There will then be 2 additional installments, paying £25 at the end of August and £25 at the end of September. Please note that installments are non-refundable, and all installments must be made prior to the event in order to receive your ticket.

UPDATED POSTER 4

Love 80’s Liverpool Roadshow Fundraiser

Love 80s Liverpool Roadshow Event Poster

An evening of music and a chance to dance the night away to all the tracks you hear on Love 80’s radio! With freebies up for grabs, a prize for the best 80’s gear and a raffle with some ‘money can’t buy’ prizes as well.

When: Saturday, 23rd June 2018 from 7.30pm until late
Where: St Joseph’s Social Club, Birkenhead
Cost: £10 per person which includes a chip butty!

Tickets can be purchased via EventBrite (please note there is an additional charge imposed by EventBrite) or directly from St Joseph’s Social Club.

Love 80s Liverpool Roadshow Event Poster

Cheesy Bingo!

Cheesy Bingo, Cheesy Music and Cheesy Prizes

Love Bongo’s Bingo? Then you will love 🧀 Cheesy Bingo on Saturday 14th July at the Poulton Vics in Wallasey! Play Bingo! Dance to Cheesy Music and win Cheesy Prizes!

If you fancy joining us for a good night out then you can get your tickets online from Skiddle. Tickets cost £10 plus £1.75 card fee.

Please note, you must be 18 or over to attend.
Warning! Smoke & strobe lighting effects will be in use

Cheesy Bingo!

Weekly Roundup 3rd June

Hi all, it’s our weekly round-up post! As always, we want to say a huge thank you to everyone who is mentioned below, for those who have attended/supported and for everyone who has made a donation no matter what size. We appreciate you all ❤️💙
 
Check out our upcoming events to see what’s going on in the next week and beyond.
 
Last Sunday, young Liam Reay did a sponsored walk over 12 miles. He raised just over £584! Well done Liam!
 
Yesterday we had a Vale Park Music Festival up in Wallasey. Great music, lots of fun, and despite the poor weather it raised £438. A big thank you to Claire Sim and all who volunteered, plus Christopher Locke for organising the music and Ragamuffin and guests for performing.
 
Also, Steve Allen ran the Abersoch 10k with his family whilst his wife Helen Allen, and her sister Nikki were cheerleading and helping us spread awareness with Spider-Ede t-shirts on. Steve and Helen’s son, Will, sadly passed away from DIPG in December 2016 aged 14, and have since been fundraising in his memory to help other children #willpower
 
Today, Genting Casino held their poker tournament in aid of our appeal. Thank you to all involved and to those who attended.
 
Young Isabelle, just 6 years old, did a sponsored crab catch today as well, raising over £250! Well done Isabelle, such a wonderful way to raise awareness and sponsorship!
 
Also today, Jazmin Sneddon walked up Mount Snowdon in a Spider-Man costume in the hot sunshine! Well done Jazmin for not just raising funds but also spreading more awareness for us to those who you met along the way.
 
This past week, Katharine Hughes walked 96 miles on the West Highland Way in Scotland, flying the Spider-Ede flag and collecting donations along the way. A huge thank you to Katharine for raising awareness so far away and also of course for the collections made. She’s raised just over £705 so far! You can show your support for her at https://www.justgiving.com/fundraising/katharinehughes-westhighlandway4edie-may
 
Also thanks this week to
Thingwall Primary School’s bake sale before half term – £180
St Andrews C/E School – £243
St Joseph’s Upton School – £642
K G Lancaster – £475
Mr J Evans – £100
Combermere No 605 Benevolent Fund – £250
Mr Kevin P Conlan – £1,000
Accounting and Commercial Solutions Ltd – £100
Eli Lilly Speke Operations Workplace Trust – £500
Euro Garage Green Lane – £31.30
Co-op Teehey Lane – £38.81
Iconic Upton – £31.05
Jaime & Yvonne Slawson Collection – £103
The Mockbeggar Hall Wetherspoon Moreton
The Coffee Co, Bebington
 
Next week we have Bingo night featuring Captain America, who has been practising the Floss! 😉 Tickets are still available, £10 per person, drop us a message if you want to buy any.
 
Also today, Rachael Rowlands, David Hibbert and Lucy Rowlands are driving from Edinburgh to Rome, roughly 2000 miles each way, in an old London Taxi as part of a Rust2Rome rally with 40 other cars. The criteria was that the car could not be worth more than £500 on the road! Spare a though for them driving this non air conditioned car considering the weather forecast this week! and please show your support by sponsoring them at https://www.justgiving.com/fundraising/rachael-rowlands2
 
Good luck to Sue Fowler and Harry Walch who are swimming in the Great North Swim, and Scott McCready who is doing an Ironman competition, all in aid of Edie next weekend.
 
Finally, a couple of future ticketed events if you want to get in before they all go!
23rd June, Love 80s, St Joseph’s Social Club Birkenhead – https://www.eventbrite.co.uk/e/love-80s-roadshow-tickets-45551396453?aff=es2
1st July, Spider-Ede Sunset Cruise, Seacombe Terminal – http://cruise.spider-ede.org.uk
 
Apologies if we’ve missed anyone out. Please let us know in the comments below. If you are holding a fundraiser or wish to, please email fundraising@spider-ede.org.uk so that we can send you our ePack and get you on our events calendar.
 
Or text EDIE03 £(amount up to 10) to 70070

 

Hero Diaries – 6 Months On

On 30th November 2017 we heard the words no parent should have to hear…

On the 30th November 2017 we heard the words no parents should have to hear…

This week we are 6 months on from that awful day and we wanted to share with you our journey from the beginning. For those that have been with us from the start and those that have joined us along the way, we are so thankful to have you fighting with us.

JustGiving.spider-ede.org.uk
Text EDIE03 £? to 70070

The Spider-Ede Sunset Cruise

Join us on 1st July aboard the Mersey Ferry for an evening of live music with Marc Kenny and the Beatles tribute act, Paperback Writers.

The cruise will depart from Seacombe ferry terminal at 7.30pm and take approximately 2 hours. There is a fully licensed bar onboard as well.

Tickets are £20 per person and are available from the Spider-Ede Cruise Page on the Mersey Travel Booking Site.

Please note the live music performance area is on the upper deck which is accessible by stairs only.

The Spider-Ede Sunset Cruise (Poster)

Spider-Ede Around the World

All Around the World

Are you going on holiday? Or even a day out somewhere different?? 🗺

Can you help us by wearing your Spider-Ede Tshirts? Spread the word and tell the world! ✈️🌍 🚗🌍 🚂🌍 🚢

If you haven’t yet got yourself a tshirt you can order one from the wonderful Nikki at 14 Degrees Down.

How far can Spider-Ede get?

You can post your photos on Facebook, Twitter or Instagram, make them PUBLIC and use #SpiderEdeTee so that we can see them, and let us know where in the world you are 💪💪

Alternatively you can send your photo direct to: contact@spider-ede.org.uk

All Around the World

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