Update – 21st October

Not so long, but overdue…..

Sorry everyone. We have had a really crazy week. But we know how worried you have all been.

Unfortunately, we didn’t get the results we hoped and prayed so hard for from the EEG.

It showed very little brain activity 💔💔💔

This hit us hard, and not even a week after we had been organising her birthday ball we began to make funeral arrangements for our 4 year old daughter.

Then she gave us hope. Her oxygen saturation had dropped and Doctors explained it will probably continue to drop and not come back up, they told us her heart would then slow and her body begin to shut down completely.

Well, her oxygen saturation came back up that night and hasn’t dropped since 🙏🙏🙏🙏

We will continue to wait and let Edie take us the direction she needs to go. She is simply on ventilation, medication for pain and inflammation and natural supplements.

Better news is that today Auntie Kirsty arrived in Monterrey with WonderNiamh and IronLen. They have certainly raised spirits all round and today our hearts are a little fuller again ❤️❤️

🤞🤞🙏🙏Come on Ede 🙏🙏🤞🤞

❤️🕷💙

JustGiving.spider-ede.org.uk

Text EDIE03 £? to 70070

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