On 30th November 2017 we heard the words no parent should have to hear…
On the 30th November 2017 we heard the words no parents should have to hear…
This week we are 6 months on from that awful day and we wanted to share with you our journey from the beginning. For those that have been with us from the start and those that have joined us along the way, we are so thankful to have you fighting with us.
It’s been an emotional rollercoaster this week, but we’ve got through it and our little DIPG warrior is still fighting thanks to the love and support of everyone back home.
Ashleigh talks about the current treatment for Edie plus some videos and photos from the last week
Today we set up the Spider-Ede YouTube channel to allow us to easily upload videos for everyone to keep track of our journey. We’re off to Mexico very soon and we expect to be there for 3-4 months, so whilst we’re away we’ll be doing some video diaries (vlogs) and adding them to the channel. So please subscribe to it to keep following our journey. We’ll also continue to have our team of fund raising avengers posting both here and on our various social media accounts (links in the top right of the site!).
We also hit our first 20% of our target over Christmas and New Year. Here’s what Edie thought of it!