• Lenny, Edie and Niamh

    Hero Diaries – 9 months on

    DIPG is an aggressive paediatric brain tumour, with a median survival age of 9 months from diagnosis. Today marks Edie’s 9 months. We wanted to use this opportunity to focus

    Read more »
  • Spider-Ede’s Birthday Ball

    Taking place on Friday 12th October, 2018, the Spider-Ede Appeal is presenting our biggest event yet! To celebrate Edie’s 4th Birthday we will be holding Spider-Ede’s Birthday Ball at the

    Read more »
  • Spider-Ede Rocks!

    Can you help? We are spreading awareness of Edie’s fight and DIPG by painting rocks, writing on them and adding photos to the Facebook group #SpiderEdeRocks. If you would like

    Read more »
  • Edie with Dr Ranj

    The news that rocked our world

    30th November 2017 – Steve and I had the most heartbreaking news we could ever imagine. After months of headaches my three year old daughter Edie was referred for an

    Read more »

Fund Raising & Events