The Spider-Ede Appeal

Raising funds and awareness of DIPG

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  • Grand National Race Card for the Honourary 41st Runner

    Spider-Ede to Line Up at the Randox Health Grand National

    Organisers of Saturday’s Randox Health Grand National have awarded an honorary 41st place in the World’s greatest race to Edie. This massive show of support will help raise awareness of

    Read more »

  • The Hero Diaries – Weeks 10-13

    We’ve had a little break from the video diaries whilst Edie has been in hospital and time has been precious, but here is a catch up from Ashleigh.

    Read more »

  • Spider-Ede T-Shirts Now Available!

    We’ve had a few people ask us about getting our logo on a t-shirt, and we’re happy to announce that our online site is now able to take orders for

    Read more »
  • Edie with Dr Ranj

    The news that rocked our world

    30th November 2017 – Steve and I had the most heartbreaking news we could ever imagine. After months of headaches my three year old daughter Edie was referred for an

    Read more »

News

Grand National Race Card for the Honourary 41st Runner

Spider-Ede to Line Up at the Randox Health Grand National

April 12, 2018 Leave a comment

Organisers of Saturday’s Randox Health Grand National have awarded an honorary 41st place in the World’s greatest race to Edie. This massive show of support

The Hero Diaries – Weeks 10-13

April 8, 2018 Leave a comment

Weekly Roundup – 8th April

April 8, 2018 Leave a comment

Spider-Ede on TV!

April 3, 2018 Leave a comment

Fund Raising & Events

Weekly Round – 1st April

April 1, 2018 Leave a comment

Hi all, it’s our weekly round-up post to say thank you to those who have held an event or participated in a sponsored event for

Charlie Landsborough and his band

Spider-Ede Appeal Charity Evening at the Gladstone Theatre

March 29, 2018 One comment

Marathon Madness Completed

March 18, 2018 Leave a comment
John Hammond

John Hammond’s Marathon Runs

March 14, 2018 Leave a comment

Bingo Night, Friday 6th April

April 2, 2018 Leave a comment

Join us for an evening of fun and laughs at our Bingo night with a side of raffle. When: Friday 6th April at 7pm, eyes

Dock AFC Race Afternoon

Charity Race Afternoon

March 26, 2018 Leave a comment
The Ultimate Football & Sports Quiz - Friday 9th March 2018

The Ultimate Football and Sport Quiz!

March 3, 2018 Leave a comment
Ede Fest Poster

Ede-Fest, The Boot, Liscard

February 5, 2018 One comment

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Bradley Lowery Foundation - Supporting Fundraising Campaigns (Registered Charity No: 1174333

Upcoming Events

  • LFC Legends Night, Anfield - 13th April
  • Dock AFC Charity Race Afternoon - The Joeys, Tranmere - 15th April

To view our full calendar of upcoming events, visit our Upcoming Events page.

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Latest Posts

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  • Grand National Race Card for the Honourary 41st RunnerSpider-Ede to Line Up at the Randox Health Grand National
    April 12, 2018
  • The Hero Diaries – Weeks 10-13
    April 8, 2018
  • Weekly Roundup – 8th April
    April 8, 2018
  • Spider-Ede on TV!
    April 3, 2018
  • Bingo Night, Friday 6th April
    April 2, 2018
  • Leigh-Anne RacingRunning for Edie
    January 3, 2018
  • Buy a Spider-Ede Bracelet
    December 22, 2017
  • New YouTube Channel
    January 2, 2018
  • Charlie Landsborough and his bandSpider-Ede Appeal Charity Evening at the Gladstone Theatre
    March 29, 2018
  • Race at your pace challenge
    January 1, 2018
  • Louise on Spider-Ede Appeal Charity Evening at the Gladstone Theatre
  • Spider-Ede on Buy a Spider-Ede Bracelet
  • Derry on Buy a Spider-Ede Bracelet
  • Yvonne Ahern on Ede-Fest, The Boot, Liscard
  • Thank you Wirral Advanced Motorcyclists | The Spider-Ede Appeal on Positive News from Mexico

The Spider-Ede Appeal – DIPG Awareness

The Spider-Ede Appeal – DIPG Awareness

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Upcoming Events

  • Netball Tournament April 21, 2018 at 9:30 am – 2:00 pm Pensby High School, 127 Irby Road, Wirral, CH61 6XN, England Open to all clubs. £70 per team. Contact Louise for a registration form at louise.moss@englandnetball.co.uk
  • L1 Fundraiser April 21, 2018 at 11:00 am – 3:00 pm Liverpool ONE, 6 Paradise Street, Liverpool, L1 8BQ The Spider-Ede team will be out and about at Liverpool ONE, with our bands and our buckets, to entertain you while you shop, all in aid of the Spider-Ede Appeal.
  • Leasowe Lighthouse Abseil April 22, 2018 at 12:00 pm – 2:00 pm Leasowe Lighthouse, Leasowe Common, Moreton, Wirral CH46 4TA Some of our fantastic supporters will be braving the elements, and gravity, to help raise funds for both the Spider-Ede Appeal and the lighthouse's own charity, by abseiling down the lighthouse.

Instagram

Get yourselves to leasowe lighthouse tomorrow from 12.30 to support Edie’s abseilers ♥️💙
Edie has been in hospital again this week due to some minor tummy problems. She was getting uncomfortable in the apartment and not sleeping. Turns out she had a blockage in her bowel preventing her stomach to drain properly. It was a possibility she would need another surgery but she cleared it herself after they drained her stomach and flushed with water 💪💪 Sorry for the late update and to keep you all in the dark but we really don’t like giving so much bad news. Now we know she is on the mend 💪💪 it turns out to be a better update. Keep going Ede!! ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk Text EDIE03 £? to 70070 #Fight4Edie #DIPGAwareness https://m.facebook.com/thespideredeappeal/
TIP OF THE DAY SPIDER-EDE number 41 You can’t actually bet on this horse in the Grand National but you can back her by texting the money you would of put on. @bradleysfight @AintreeRaces @TheJockeyClub @RandoxHealth TEXT edie03 £(amount) To 70070
The amazing @sarahheller at Sals barbers in Irby today is celebrating her one year anniversary by donating today’s takings to the Spider-Ede appeal, get yourself to Sals for a haircut and a piece of cake 😋♥️💙 #salsbarbers #freshcuts #fight4edie #dipg #dipgawareness
Tickets still available! Live music from the amazing Tequila ♥️💙
Baltic Secret Garden in Liverpool are donating towards The Spider-Ede Appeal with every bouquet purchased throughout April!!! How amazing and generous is that?! ❤️🕷💙 Thank you Baltic Secret Garden! #Fight4Edie #DIPGAwareness www.JustGiving.spider-ede.org.uk www.spider-ede.org.uk
When Edie came back with half her head shaved a page came up on my newsfeed Le bebé A children’s boutique, I decided to order some superhero hair bows for both our girls, after me explaining why we are here in Monterrey the lovely Lucia from the online store insisted they gift the bows to us and invited us along to the Kids market in Monterrey yesterday. Unfortunately Edie isn’t quite ready to venture out for too long but I managed to take Wonder Niamh & Iron Len for a couple of hours. They had lots of fun and made sure that they brought Edie back some sensory toys too😍 🎀🎀Thank you Lucia for being so kind and generous, the girls love their bows!🎀🎀 ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk #Fight4Edie #DIPGAwareness
🏆🏅🏆Two champions 🏆🏅🏆 Well done John Hammond completing the Marathon Des Sables Maroc this week all to raise funds for Spider-Ede!! You know how much we admire you! We can’t believe what you put yourself through for others! Such a massive achievement!🏃🏻🏃🏻🏃🏻 And a huge well done to our girl herself! Treatment number 5 was an in and out procedure this time and she is on the way back to the apartment!!💪💪 You can still show John your support by sponsoring him here: https://www.justgiving.com/crowdfunding/Hammo76 ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk #Fight4Edie #DIPGAwareness
Edie has now gone for her MRI 🤞🙏 It’s always so hard coming in to hospital but even more so since we just spent almost 6 weeks in here. Edie got a little upset before she went in, she really doesn’t like getting sedated. Ever since the very first MRI in November she knows how it makes her feel funny. But she did manage a little wriggle of her fingers to wave before they sedated her. Come on Edie! You got this baby 💪💪 ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk #Fight4Edie #DIPGAwareness

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