• Hero Diaries – 6 Months On

    On 30th November 2017 we heard the words no parent should have to hear… On the 30th November 2017 we heard the words no parents should have to hear… This

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  • Spider-Ede Rocks!

    Can you help? We are spreading awareness of Edie’s fight and DIPG by painting rocks, writing on them and adding photos to the Facebook group #SpiderEdeRocks. If you would like

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  • Edie with Dr Ranj

    The news that rocked our world

    30th November 2017 – Steve and I had the most heartbreaking news we could ever imagine. After months of headaches my three year old daughter Edie was referred for an

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