The Spider-Ede Appeal

Raising funds and awareness of DIPG

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  • MRI Scan of Brain with DIPG

    DIPG Awareness Day – 17th May

    In the USA, 17th May 2017 was recognised as D.I.P.G awareness day by 22 states thanks to the Michael Mosier Foundation. This date is significant to them as it is

    Read more »

  • The Hero Diaries – Weeks 10-13

    We’ve had a little break from the video diaries whilst Edie has been in hospital and time has been precious, but here is a catch up from Ashleigh.

    Read more »
  • Edie with Dr Ranj

    The news that rocked our world

    30th November 2017 – Steve and I had the most heartbreaking news we could ever imagine. After months of headaches my three year old daughter Edie was referred for an

    Read more »

News

MRI Scan of Brain with DIPG

DIPG Awareness Day – 17th May

April 21, 2018 Leave a comment

In the USA, 17th May 2017 was recognised as D.I.P.G awareness day by 22 states thanks to the Michael Mosier Foundation. This date is significant

Grand National Race Card for the Honourary 41st Runner

Spider-Ede to Line Up at the Randox Health Grand National

April 12, 2018 Leave a comment

The Hero Diaries – Weeks 10-13

April 8, 2018 Leave a comment

Weekly Roundup – 8th April

April 8, 2018 Leave a comment

Fund Raising & Events

Weekly Round – 1st April

April 1, 2018 Leave a comment

Hi all, it’s our weekly round-up post to say thank you to those who have held an event or participated in a sponsored event for

Charlie Landsborough and his band

Spider-Ede Appeal Charity Evening at the Gladstone Theatre

March 29, 2018 One comment

Marathon Madness Completed

March 18, 2018 Leave a comment
John Hammond

John Hammond’s Marathon Runs

March 14, 2018 Leave a comment
MRI Scan of Brain with DIPG

DIPG Awareness Day – 17th May

April 21, 2018 Leave a comment

In the USA, 17th May 2017 was recognised as D.I.P.G awareness day by 22 states thanks to the Michael Mosier Foundation. This date is significant

Bake4Edie Poster

Bake 4 Edie – DIPG Awareness

April 21, 2018 Leave a comment

Bingo Night, Friday 6th April

April 2, 2018 Leave a comment
Dock AFC Race Afternoon

Charity Race Afternoon

March 26, 2018 Leave a comment

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Bradley Lowery Foundation - Supporting Fundraising Campaigns (Registered Charity No: 1174333

Upcoming Events

  • 27th April - Charity Race Night, London
  • 28th April - Edie's Casino Night, Wallasey
  • 11th May - Charity Football Match, Edie's 11 vs Hollyoaks
  • 17th May - Bake 4 Edie

To view our full calendar of upcoming events, visit our Upcoming Events page.

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Latest Posts

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  • MRI Scan of Brain with DIPGDIPG Awareness Day – 17th May
    April 21, 2018
  • Bake4Edie PosterBake 4 Edie – DIPG Awareness
    April 21, 2018
  • Grand National Race Card for the Honourary 41st RunnerSpider-Ede to Line Up at the Randox Health Grand National
    April 12, 2018
  • The Hero Diaries – Weeks 10-13
    April 8, 2018
  • Weekly Roundup – 8th April
    April 8, 2018
  • Leigh-Anne RacingRunning for Edie
    January 3, 2018
  • Buy a Spider-Ede Bracelet
    December 22, 2017
  • New YouTube Channel
    January 2, 2018
  • Charlie Landsborough and his bandSpider-Ede Appeal Charity Evening at the Gladstone Theatre
    March 29, 2018
  • Race at your pace challenge
    January 1, 2018
  • Louise on Spider-Ede Appeal Charity Evening at the Gladstone Theatre
  • Spider-Ede on Buy a Spider-Ede Bracelet
  • Derry on Buy a Spider-Ede Bracelet
  • Yvonne Ahern on Ede-Fest, The Boot, Liscard
  • Thank you Wirral Advanced Motorcyclists | The Spider-Ede Appeal on Positive News from Mexico

The Spider-Ede Appeal – DIPG Awareness

The Spider-Ede Appeal – DIPG Awareness

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Upcoming Events

  • Charity Race Night April 27, 2018 at 6:00 pm – 11:00 pm The Wine Lodge, 143 Fenchurch Street, London, EC3M 6BL £20 per ticket, includes a buffet during the evening. 8-10 horse races, each horse sold at a minimum of £20 each. Winning horse owner per race gets a prize. An auction will also be held. Contact the Venue for tickets or email Chris@spider-ede.org.uk
  • Edie’s Casino Night April 28, 2018 at 7:30 pm – 12:30 am Poulton Victoria Sports & Social Club, Poulton Bridge Road, Wallasey, CH44 5SW An unforgettable evening. Casino tables; Live music from Tequila; Hot and cold buffet; Raffle. Not to be missed! Contact Kirsty Stading for tickets at kirsty@spider-ede.org.uk
  • Sportsmans Pub Fundraising Night May 4, 2018 at 7:00 pm – 11:55 pm More info to follow.

Instagram

Get yourselves to leasowe lighthouse tomorrow from 12.30 to support Edie’s abseilers ♥️💙
Edie has been in hospital again this week due to some minor tummy problems. She was getting uncomfortable in the apartment and not sleeping. Turns out she had a blockage in her bowel preventing her stomach to drain properly. It was a possibility she would need another surgery but she cleared it herself after they drained her stomach and flushed with water 💪💪 Sorry for the late update and to keep you all in the dark but we really don’t like giving so much bad news. Now we know she is on the mend 💪💪 it turns out to be a better update. Keep going Ede!! ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk Text EDIE03 £? to 70070 #Fight4Edie #DIPGAwareness https://m.facebook.com/thespideredeappeal/
TIP OF THE DAY SPIDER-EDE number 41 You can’t actually bet on this horse in the Grand National but you can back her by texting the money you would of put on. @bradleysfight @AintreeRaces @TheJockeyClub @RandoxHealth TEXT edie03 £(amount) To 70070
The amazing @sarahheller at Sals barbers in Irby today is celebrating her one year anniversary by donating today’s takings to the Spider-Ede appeal, get yourself to Sals for a haircut and a piece of cake 😋♥️💙 #salsbarbers #freshcuts #fight4edie #dipg #dipgawareness
Tickets still available! Live music from the amazing Tequila ♥️💙
Baltic Secret Garden in Liverpool are donating towards The Spider-Ede Appeal with every bouquet purchased throughout April!!! How amazing and generous is that?! ❤️🕷💙 Thank you Baltic Secret Garden! #Fight4Edie #DIPGAwareness www.JustGiving.spider-ede.org.uk www.spider-ede.org.uk
When Edie came back with half her head shaved a page came up on my newsfeed Le bebé A children’s boutique, I decided to order some superhero hair bows for both our girls, after me explaining why we are here in Monterrey the lovely Lucia from the online store insisted they gift the bows to us and invited us along to the Kids market in Monterrey yesterday. Unfortunately Edie isn’t quite ready to venture out for too long but I managed to take Wonder Niamh & Iron Len for a couple of hours. They had lots of fun and made sure that they brought Edie back some sensory toys too😍 🎀🎀Thank you Lucia for being so kind and generous, the girls love their bows!🎀🎀 ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk #Fight4Edie #DIPGAwareness
🏆🏅🏆Two champions 🏆🏅🏆 Well done John Hammond completing the Marathon Des Sables Maroc this week all to raise funds for Spider-Ede!! You know how much we admire you! We can’t believe what you put yourself through for others! Such a massive achievement!🏃🏻🏃🏻🏃🏻 And a huge well done to our girl herself! Treatment number 5 was an in and out procedure this time and she is on the way back to the apartment!!💪💪 You can still show John your support by sponsoring him here: https://www.justgiving.com/crowdfunding/Hammo76 ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk #Fight4Edie #DIPGAwareness
Edie has now gone for her MRI 🤞🙏 It’s always so hard coming in to hospital but even more so since we just spent almost 6 weeks in here. Edie got a little upset before she went in, she really doesn’t like getting sedated. Ever since the very first MRI in November she knows how it makes her feel funny. But she did manage a little wriggle of her fingers to wave before they sedated her. Come on Edie! You got this baby 💪💪 ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk #Fight4Edie #DIPGAwareness

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