• Happy Birthday Edie!

    WOW! What a night we had yesterday celebrating Edie’s 4th Birthday. Thank you to everyone who attended, I’m sure you will all agree that the night just wouldn’t have been

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  • Lenny, Edie and Niamh

    Hero Diaries – 9 months on

    DIPG is an aggressive paediatric brain tumour, with a median survival age of 9 months from diagnosis. Today marks Edie’s 9 months. We wanted to use this opportunity to focus

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  • Spider-Ede Rocks!

    Can you help? We are spreading awareness of Edie’s fight and DIPG by painting rocks, writing on them and adding photos to the Facebook group #SpiderEdeRocks. If you would like

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  • Edie with Dr Ranj

    The news that rocked our world

    30th November 2017 – Steve and I had the most heartbreaking news we could ever imagine. After months of headaches my three year old daughter Edie was referred for an

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