This week Edie has been in ICU all week.
Tag Archives: mexico
This week has been another rollercoaster, starting the week well but ending on a hospital trip and worrying 48 hours.
We started the week off with positive news for Edie and it’s been a busy week with the arrival of Nanny Hazel and Aunty Kirsty. We’ve done so much this week just getting some family time in.
It’s been an emotional rollercoaster this week, but we’ve got through it and our little DIPG warrior is still fighting thanks to the love and support of everyone back home.
Ashleigh talks about the current treatment for Edie plus some videos and photos from the last week
Today we flew past the £95,000 mark. This means we are almost a third of the way to our estimated target of £300,000*. Please help us get there!
On Wednesday evening (24th January), Edie is due to have a follow up appointment at the hospital in Mexico to check on how she has responded to the treatment, the side effects suffered and how she is in herself. From there the doctors will decide how to proceed and when the next treatment appointment should be.
So let’s see if we can get to the £100,000 milestone before this appointment. It would give us a such a boost and a show of support to take us into the appointment knowing everyone is still behind us every step of the way.
To donate directly please visit our Spider-Ede Appeal Campaign Page.
(* Please note this is only an estimated target for the minimum number of treatments needed)
The first of hopefully many video diaries has just gone live on our YouTube channel. It features Ashleigh and Edie talking about how things have been, how the first treatment for Edie went and what they’re up to in between the hospital visits.
You may have read earlier in the month that we had a letter from Mexico confirming that Edie had been accepted onto their DIPG treatment program. This is amazing news and really gives us hope. We are trying to get plans in place to leave during the first week of January as we need to be there by the 13th before our place is lost and we have to reapply. However, we also felt that those who have already donated or considering donating understand that this is just the first step, the first consultation and it’s only the start of what will be a long and costly year ahead of us.
We have been overwhelmed by the generosity of those who have already donated, those who have already held events to help raise funds, raffle prize donators and more. Every person who has even just shared our story has helped to raise awareness and potentially found us another donor. Our current total stands at just over £45,000, which is 15% of our total target.
However, as amazing as this has been, the fund raising doesn’t end here. We will be in Mexico for potentially up to a month and then having to return monthly for further treatments. Each of these cost a lot of money. Our first bill is approximately $32,000 which is just under £24,000. That doesn’t include the cost of last minute flights to Mexico, accommodation for all of us whilst out there, the urgent Passports that we’ve had to sort out for us and the children, plus everything else that comes with moving to another country at a moment’s notice.
So we still need your help. We appreciate that it’s the most expensive time of year however one of our fund raising avengers (our close network of family and friends who will be running everything and continuing to co-ordinate fund raising plans/events whilst we are away) has come up with a plan.
Edie’s 300 is a group of people who are willing to pledge £10 a week (just over £43 a month) and set up a standing order, to send this money into our bank account and help to lay the foundations of our future fund raising. We know people would love to donate and we realise that we can’t raise so much money so quickly, however this would reduce the monthly average needed to be raised and ease the pressure on our amazing team of avengers and everyone else who are trying to help us.
If you would like to join our 300, please visit Edie’s 300 page and complete the form. Bank account details will then be forwarded for setting up a standing order.
Fund Raising Events
We still need fund raising events to go on! We have a few already set up to go ahead and more are being planned, however we still need more! We have set up a fund raising with a list of ideas and will be adding poster templates, our standard posters, different logo options for sticker printing and/or t’shirt printing. If you are planning a fund raising event please also contact us and let us know the details. We can then add it to our list of upcoming events, help publicise it and maybe even help out if at all possible.
Anything you can do is absolutely amazing and truly appreciated from the very bottom of our hearts and that’s not just from Edie’s immediate family but her extended family and friends. You’re all superheroes in helping us to save our little superhero.
Yesterday we had a letter from the Instituto De Oncologia Intervencionista, confirming our acceptance onto their DIPG treatment program. They’ve had all of Edie’s medical information, scans, videos of her and have agreed to proceed with treating her brain tumour. We will therefore be leaving for Mexico ready for when they open up after Christmas and will be there for most if not all of January.
This is a huge step forward for us however this means now more than ever that we need your help to raise vital funds to allow us to keep her on this treatment path.
Please help in any way you can: