Tag Archives: featured

Spider-Ede’s Birthday Ball

Taking place on Friday 12th October, 2018, the Spider-Ede Appeal is presenting our biggest event yet! To celebrate Edie’s 4th Birthday we will be holding Spider-Ede’s Birthday Ball at the prestigious five star Hillbark Hotel in Frankby, Wirral.

Arrival is from 6pm and the evening will be hosted by Radio City 2’s Claire Simmo.

Entertainment is by X-Factor & Dancing On Ice star Ray Quinn, and also Tricia McTeague, and LUMA.

There will be other special guests and surprise entertainment on the evening.

Attendees will enjoy a 3 course meal and unlimited wine.

Tickets cost £85.00 per person and can be paid for in either one payment, or 3 installments.

To book to your ticket(s) please select one of the following two options:

Spider-Ede’s Birthday Ball Full Payment Option

Full payment for tickets to Spider-Ede’s Birthday Ball.

£85.00

Spider-Ede's Birthday Ball

Spider-Ede’s Birthday Ball Installment Option

Initial payment for buying tickets to the Birthday Ball in installments.

£35.00

This option is only available from 1st-31st July – this option allows you to reserve your ticket at an initial cost of £35. There will then be 2 additional installments, paying £25 at the end of August and £25 at the end of September. Please note that installments are non-refundable, and all installments must be made prior to the event in order to receive your ticket.

UPDATED POSTER 4

Hero Diaries – 6 Months On

On 30th November 2017 we heard the words no parent should have to hear…

On the 30th November 2017 we heard the words no parents should have to hear…

This week we are 6 months on from that awful day and we wanted to share with you our journey from the beginning. For those that have been with us from the start and those that have joined us along the way, we are so thankful to have you fighting with us.

JustGiving.spider-ede.org.uk
Text EDIE03 £? to 70070

Spider-Ede Rocks!

Can you help?

We are spreading awareness of Edie’s fight and DIPG by painting rocks, writing on them and adding photos to the Facebook group #SpiderEdeRocks.

If you would like to join in here’s what you need to do:

  • Join the facebook group #SpiderEdeRocks;
  • Decorate a rock using acrylic paint, marker pens or anything else you find that works;
  • Write on the rock:
    • The Spider-Ede Appeal
      #SpiderEdeRocks
      Post a photo
      Please hide again
  • Seal the rock with PVA glue or varnish;
  • Post a photo of your masterpiece to the facebook group #SpiderEdeRocks.

If you don’t use Facebook then just comment below to let us know if you’ve found a rock and whereabouts. We love to hear how far our rocks have travelled!

If you’d like some ideas of what to use for rock painting, here are some acrylic paint pens and a spray seal on Amazon which are easy to use and far less messy that standard paints with a brush!

The news that rocked our world

Edie with Dr Ranj

30th November 2017 – Steve and I had the most heartbreaking news we could ever imagine. After months of headaches my three year old daughter Edie was referred for an MRI with suspect migraines. The result of these scans came back that Edie has a 3.4cm tumour in her brain stem. We then went straight to Alder Hey hospital in Liverpool, where she had a more advanced MRI scan on the Friday. She still has to go through more tests but the specialists believe it could be a Diffuse Intrinsic Pontine Glioma (DIPG). This is a rare cancer that effects children and so far is untreatable, incurable and fatal.

5th December 2017 – We returned to Alder Hey and Edie got to meet Dr Ranj filming for CBeebies. We spoke to a number of specialists and were left with a lot to think over. After meeting Lucy from Lucy’s Pineapple Fund, we also contacted the Instituto de Oncologia Intervencionista in Monterrey, Mexico, a group of doctors specialising in DIPG treatment who asked for a copy of Edie’s brain scans and a video of her in person.