Tag Archives: featured

Spider-Ede to Line Up at the Randox Health Grand National

Grand National Race Card for the Honourary 41st Runner

Organisers of Saturday’s Randox Health Grand National have awarded an honorary 41st place in the World’s greatest race to Edie. This massive show of support will help raise awareness of DIPG and Edie’s fight by bringing it to the attention of a truly global audience.

In 2017, Jockey Club Racecourses (JCR) created an honorary berth in the race for five year old Bradley Lowery, helping to raise awareness of Bradley’s fight with neuroblastoma, and they have continued to work closely with the Bradley Lowery Foundation (BLF) afterwards. It’s through this link with the BLF, who support Edie and the Spider-Ede Appeal, that this amazing honour has come about.

Edie’s place on the racecard is explained on the Randox Health website, where they wrote:

In the racecard, Edie’s red and blue silks represent the colours of her favourite superhero, Spiderman, who also appears as her trainer. Her age is listed (3) and her elder sister Niamh and younger brother Leonard are her jockeys for the day. Edie’s actual weight (14 kilograms) also appears.

Also featured are Edie’s parents and grandparents: her father Stephen and mother Ashleigh, and her grandfather Chris and grandmothers Hazel and Ann.

Her write-up in the racecard reads: Making her Aintree debut, Edie loves walking in the park, playing with her puppy Ellie and gymnastics. But most of all she loves playing with her brother & sister and cuddles with Mummy & Daddy. Sure to make an impact, so will be well supported.

Whilst you can’t bet on Spider-Ede at the Grand National you can back Edie by donating to the Spider-Ede Appeal via Just Giving or Text Edie03 £(Amount up to 10) to 70070.

You can read more about this story on the Randox Health website and also on the BBC News site.

The Jockey Club have also produced the following video to introduce Edie:

Spider-Ede T-Shirts Now Available!

We’ve had a few people ask us about getting our logo on a t-shirt, and we’re happy to announce that our online site is now able to take orders for t-shirts! We have sizes from age 1 to 15 years, and then adult sizes from small to 5XL! We can offer these t-shirts in 3 different colours, white, grey and blue, plus the option of having either our comic poster on the rear, a copy of the Wirral Globe’s front page or customised text.

Payment is taken via PayPal and the orders will either be posted first class, if postage is chosen, or you can elect to pick up from our Tranmere pick up point (this will be arranged once your order is ready for collection).

If you have any questions please let us know in the comments below and we will endeavour to reply as soon as we can! Otherwise just visit our Merchandise website.

 

The news that rocked our world

Edie with Dr Ranj

30th November 2017 – Steve and I had the most heartbreaking news we could ever imagine. After months of headaches my three year old daughter Edie was referred for an MRI with suspect migraines. The result of these scans came back that Edie has a 3.4cm tumour in her brain stem. We then went straight to Alder Hey hospital in Liverpool, where she had a more advanced MRI scan on the Friday. She still has to go through more tests but the specialists believe it could be a Diffuse Intrinsic Pontine Glioma (DIPG). This is a rare cancer that effects children and so far is untreatable, incurable and fatal.

5th December 2017 – We returned to Alder Hey and Edie got to meet Dr Ranj filming for CBeebies. We spoke to a number of specialists and were left with a lot to think over. After meeting Lucy from Lucy’s Pineapple Fund, we also contacted the Instituto de Oncologia Intervencionista in Monterrey, Mexico, a group of doctors specialising in DIPG treatment who asked for a copy of Edie’s brain scans and a video of her in person.