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Hero Diaries Week 8

Posted on March 5, 2018 by Spider-Ede Leave a comment

This week Edie has been in ICU all week.

Diary

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Upcoming Events

27th May - Fundraising Day, The Swan, Prenton
2nd June - Music Festival, Vale Park, Wallasey
3rd June - Poker Night, Genting Casino
8th June - Bingo Night, Royal Legion, Higher Bebington

To view our full calendar of upcoming events, visit our Upcoming Events page.

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The Spider-Ede Appeal – DIPG Awareness

The Spider-Ede Appeal – DIPG Awareness

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The Spider-Ede Music Festival
May 22, 2018
Spider-Ede Rocks!
May 22, 2018
Love 80’s Liverpool Roadshow Fundraiser
May 22, 2018
Weekly Roundup 20th May
May 20, 2018
Weekly roundup 13th May
May 13, 2018

Running for Edie
January 3, 2018
Buy a Spider-Ede Bracelet
December 22, 2017
New YouTube Channel
January 2, 2018
Spider-Ede Appeal Charity Evening at the Gladstone Theatre
March 29, 2018
Sycamore Brew Beer Run
January 6, 2018

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Thank you Wirral Advanced Motorcyclists | The Spider-Ede Appeal on Positive News from Mexico

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Upcoming Events

Fitness-athon May 26, 2018 at 7:00 am – 7:00 pm The Way Fitness, Brimstage Road, Heswall 12 Fitness Sessions, one every hour from 7am until 7pm. Book in to whichever one you want by contacting The Way Fitness at http://www.thewayfitness.co.uk. Pay what you want as a donation to the appeal. You can also sponsor Paul who will be completing every workout!
Family Day for Edie May 27, 2018 at 12:00 pm – 7:00 pm The Swan, 2 Holm Lane, Prenton CH43 2HP Organised by Carol & Ron Stading, the Swan are hosting a fundraising day in aid of the Spider-Ede Appeal! With live music, raffles, face painting, Bert's bingo, popcorn, sweets, candy floss, a cake stall, beat the goalie and teddy tombola. A perfect afternoon out for all the family!
Vale Park Festival June 2, 2018 Vale Park, 86 Magazine Ln, Wallasey CH45 1LX More info to follow.

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We have had a lovely time visiting friends this weekend, the people of Monterrey have taken us in like family and we are so thankful when we have to be so far from home!We also had time to get outdoors, walk dogs from the shelter and hide #SpiderEdeRocks Please keep sending Edie your positivity, we know she’s using it all to build her strength 💪 ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk Text EDIE03 £? to 70070 #Fight4Edie #DIPGAwareness

Huge well done today to our Liverpool Rock n Roll Marathon runners!! We managed to spot 3 of them on the last stretch of the 26.2 mile in the unbearable heat. Thank you all for choosing The Spider Ede Appeal as your charity ♥️💙 #fight4edie #dipgawareness

Getting to our hospital appointments here in Mexico are so much easier with a car, all the girls in the back 🙋🙋🙋 Edie definitely enjoys getting out more too, more to see and better stimulation! ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk Text EDIE03 £? to 70070 #Fight4Edie #DIPGAwareness

Today we wish Bradley Lowery a happy heavenly birthday ♥️💙His cheeky smile would light up the darkest of rooms and no matter what he was going through he always had that smile on his face. He inspired all and continues to do so through His Mum and Dad. We can’t thank @bradleysfight enough for the continuous support they give to The Spider Ede Appeal and we know Bradley will be looking down proud of what the foundation does for others ♥️💙 #bradleylowery

Today is DIPG awareness day. Tell someone about DIPG today ♥️🕷💙 #fight4edie #dipgawareness

We can now announce our Spider-Ede Sunset Cruise!! Tickets available from http://cruise.spider-ede.org.uk/ Let us know if you are coming!!!

This is a slightly longer update than what I’ve been putting on recently... we just want to keep you all informed on where Edie’s up to Treatment #5 was at the beginning of April, we had the results that there had been 4mm shrinkage 💪🙌 A week and a half ago treatment #6 was due, we decided that while we are ahead a little bit with the shrinkage we will postpone and give Edie time to build strength back up as these last few months have been really tough on her little body. So on Friday last week, just to keep an eye on the tumour we decided to get an MRI for Edie and today (Monday) we had a meeting with the Doctors to discuss the scan images. There is no growth in the tumour 🙌🙌 and an area of haemorrhage that had been causing swelling in the posterior of the tumour has visibly shrunk 💪💪 we think giving Edie more time to rest from the last treatment would have contributed to this. As you can all imagine this has been a nervous time for us stretching the gap between treatments so early on in the programme but we as parents felt it was something we had to try and this last week we have seen some improvements in our little super hero that hopefully confirms we have made the right decisions so far 🙏🙏🤞🤞 We are just taking each day as it comes, as we’ve said before with DIPG you don’t know what is around the next corner. We have decisions to make this week on when her next treatment will be, you can only rest in this war for a short time. Right now we would like to extend our love, support and positivity to some of our warrior friends that are fighting struggles in their DIPG battle right now. ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk Text EDIE03 £? to 70070 #Fight4Edie #DIPGAwareness

Yesterday we got the chance to have a lovely couple of hours out as a family. We visited San Pedro De Pinta, walked dogs from the shelter, Niamh & Len burned some energy on the bouncy castles and then we hid some #SpiderEdeRocks ☀️☀️🐶🐕☀️☀️ Edie really enjoyed the fresh air and watching Niamh & Len play, she got excited and we know as soon as she can she’ll be right there with them! ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk Text EDIE03 £? to 70070 #Fight4Edie #DIPGAwareness #SanPedroDePinta #Prodan #DogWalk #Therapy

Thank you to all our helpers and all our supporters who came along to watch Edie’s 11 beat Hollyoaks 6-4 last night!! I hope every one loved it!! We have counted so far in excess of £2500 towards Edie’s treatment and are already looking to arrange ‘Edies 11’s’ next match 😬 ♥️🕷💙 @pazzyg1992 @jamielomas21 @jacobroberts1990 @duayneboa @lukejerdy

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