Edie had a follow up appointment today and from what the doctors have said it’s pretty positive!
The area of enhancement from the first scan, although bigger, was no longer enhanced, this could mean that the tumour is actually dying! Another good thing was the spectroscopy values, in particular choline, the amount of choline present tells you how much cellular membrane turnover there is, or in other words how active the tumour is. Well the value of choline has halved since the last MRI! This would say that the growth of the tumour is caused by necrosis (tumour cell death) and inflammation.
With these results Edie is now a perfect candidate to be given another type of drug that makes the tumour more receptive to chemotherapy and immunotherapy drugs, and we start her with those tomorrow.
Hopefully we can build on this and continue breaking the tumour down to nothing.
As you can see, Lenny found the meeting very interesting! 🙂
The Wirral Globe has published an article on this news, along with some updates on the appeal, you can read the story online at: Brave Edie receives fantastic news during treatment for inoperable brain tumour in Mexico.
Today we flew past the £95,000 mark. This means we are almost a third of the way to our estimated target of £300,000*. Please help us get there!
On Wednesday evening (24th January), Edie is due to have a follow up appointment at the hospital in Mexico to check on how she has responded to the treatment, the side effects suffered and how she is in herself. From there the doctors will decide how to proceed and when the next treatment appointment should be.
So let’s see if we can get to the £100,000 milestone before this appointment. It would give us a such a boost and a show of support to take us into the appointment knowing everyone is still behind us every step of the way.
To donate directly please visit our Spider-Ede Appeal Campaign Page.
(* Please note this is only an estimated target for the minimum number of treatments needed)
The first of hopefully many video diaries has just gone live on our YouTube channel. It features Ashleigh and Edie talking about how things have been, how the first treatment for Edie went and what they’re up to in between the hospital visits.
I spent a little while looking over this photo and deciding if I should post it or not. I’ve decided I should. Whilst it’s not distressing to look at for an outsider, this is the epitome of heartbreak for us. Spending a day in the hospital, whilst they sedate your baby to see if her tumour has grown. This is the reality of DIPG, it’s known for its aggression it’s known for its mercilessness. How could this happen to someone so small, innocent and fragile? How is that fair? It‘s not, it’s not fair to us, and it’s certainly not fair to Edie May. 😭
Please, please keep sharing our cause, please keep flooding your news feeds with her face, please keep telling anybody who will listen, and shout it to those who won’t. This is a life, a life that could be saved with the help of other people. In fact, it’s not just one life, it’s many. By helping save Edie, you’re saving our whole family, not just Ashleigh and Steve, not just Niamh and Lenny, but all of the Grandparents, Aunties, Uncles, Cousins and even friends that she means the world to. Please keep our mission going, help us with every fibre of your beings. You’ll be saving lives. Thank you