Hero Diaries – 9 months on

Lenny, Edie and Niamh

DIPG is an aggressive paediatric brain tumour, with a median survival age of 9 months from diagnosis. Today marks Edie’s 9 months.

We wanted to use this opportunity to focus on the fight so far and what affect DIPG has on Edie and her family.

Please share our video with your friends to show this can happen to any one of our children and has a devastating outcome for families all over the world. From a seemingly healthy perfect child to becoming critical in such a short time, Edie has defied all odds and has overcome each hurdle put in front of her, long may she continue to do so!! 🙏🙏

Text EDIE03 £? to 70070

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