Category Archives: Events

The Spider-Ede Music Festival

The Spider-Ede Music Festival - 2nd June, Vale Park, Wallasey

Come and join us on Saturday 2nd June, from 1pm until 5pm, in Vale Park, Wallasey, for our summer music festival! With music from Ragamuffin and guests, we’ll also have face painting, tombolas, a bouncy castle, beat the goalie, raffles, a Harley Davidson drive-by and more!

A big thank you to Claire Sim for arranging and co-ordinating the event, Christopher Locke for organising it, especially the music side of the day. Also a big thank you to Apollo Care for donating a spa voucher at the Village Hotel and for all their previous support with sponsorship for sweets and prizes.

Below are just some of the confirmed prizes up for grabs and a huge thank you for the prize donations:

The Spider-Ede Music Festival - 2nd June, Vale Park, Wallasey

DIPG Awareness Day – 17th May

MRI Scan of Brain with DIPG

In the USA, 17th May 2017 was recognised as D.I.P.G awareness day by 22 states thanks to the Michael Mosier Foundation. This date is significant to them as it is the date that Michael passed away after fighting D.I.P.G. They are working to get these states and more to recognise this day again for 2018. We believe that we need a similar day of awareness here and therefore want to extend the awareness day to the UK on the 17th May 2018.

What is D.I.P.G?

MRI Scan of Brain with DIPGD.I.P.G stands for Diffuse Intrinsic Pontine Glioma. This is a grade IV tumour which is highly aggressive and currently considered untreatable in the UK. It originates in an area of the brainstem called the pons. The pons is responsible for vital bodily functions such as breathing, swallowing, blood pressure, sleeping, eyesight and balance. On average, 25-30 children a year are diagnosed with DIPG in the UK, that is equal to about a classroom full of children. There is no known medical reason for a child developing D.I.P.G.

Can you treat D.I.P.G?

Due to its location in the centre of the brain and the diffused nature of the tumour, it is not possible to surgically remove it. Standard chemotherapy is also not an option due to the blood brain barrier ‘protecting’ the tumour. Radiation is usually offered to help shrink the tumour however due to its aggressive nature this will only prolong life for a short while. The median age of survival is 9 months with doctors usually stating between 2 weeks and 2 years. Only 10% of children survive past 2 years and less than 1% survive for 5 years.

In 50 years, cancer research has helped us improve survival rates for a lot of different cancers, however there is no difference in the treatment now to 50 years ago for DIPG sufferers. Here, parents (as DIPG is most common in children aged between 5 and 10) are told to go home and make memories. As the tumour takes hold, the vital bodily functions are impaired. However, the sufferer’s knowledge and understanding is not affected, therefore they are fully aware of what is happening to them, they simply cannot control it, becoming locked inside their own body. It has to be one of the most cruel ways to suffer.

What Can We Do?

We need to spread awareness. We need to get people talking about this, not ignoring it. Yes it is rare but it’s not rare enough. Less than 4% of funding available goes into children’s cancer research, and even less again goes into brain cancer research. We need the politicians talking about this more. Dame Tessa Jowell has recently called for improvements in fighting cancer and last year a Scottish policitian even addressed parliament about DIPG and the doctors in Monterrey, Mexico, at the Instituto de Oncologia Intervencionista hospital, who are seemingly finding ways to treat this tumour using Intra-arterial chemotherapy and immunotherapy. Sadly there were not many politicians present.

During Channel 4’s Great British Bake Off – Stand Up to Cancer, aired on 3rd April 2018, a story was told by parents about their son who had battled DIPG but sadly lost his life to it. It had people searching for further information about the young boy and learning about it. This is the type of awareness we need. The more awareness and understanding there is, the better. It plays a significant role in both the research and care for DIPG.

Get Involved

We would love for as many people as possible to get involved with some sort of fundraising on May 17th, to help raise funds and spread awareness of this horrible disease. Our own event will be our second #BakeForEdie day, hopefully we can beat the first one held on 23rd March, which raised in excess of £5000 for the Spider-Ede Appeal. However, if baking isn’t ideal for you then please consider some activity to help us spread the word, whether it’s a sponsored walk, run or even silence, or a raffle within your place of work. Maybe a non-uniform day at school? We do need to raise vital funds for treatment, but we also want people to know and understand what the 17th May is all about, and what DIPG is. So, if all else fails, please just tell someone who may not know about it. Explain it to them, direct them to this page. Let’s get people talking more.

The Spider-Ede Appeal
Part of the Bradley Lowery Foundation
Charity Number: 1174333

Donate online at JustGiving

Personal donations/collections can also be made into our Halifax bank account.
Sortcode: 11-00-54
Account No: 13747967
Please make cheques payable to Ashleigh Stading or Stephen Molyneux (Edie’s parents)

Companies can make a charitable donation to our Bradley Lowery Foundation account. Please make cheques payable to The Bradley Lowery Foundation/Edith Molyneux. Bank details for direct transfers can be provided on request.

Vist the Michael Mosier Foundation

Bake 4 Edie – DIPG Awareness

Bake4Edie Poster

On 17th May, we’re holding our second #Bake4Edie event, asking businesses, organisations, schools and stay at home worker’s/parents to hold or get involved in a cake and bake sale to help raise funds and awareness of DIPG.

For more information on D.I.P.G. and why we’ve chosen this date, please view our D.I.P.G. Awareness Day post.

Last time we reached our target of £5000! Please help us beat this on the 17th May! Feel free to print off and use the poster below to get your friends and co-workers involved too, and don’t forget to post your photos and tag them #Bake4Edie, or comment below and let us know you’re taking part!

Bake4Edie Poster

Bingo Night, Friday 6th April

Join us for an evening of fun and laughs at our Bingo night with a side of raffle.

When: Friday 6th April at 7pm, eyes down at 7.30pm

Where: British Legion, Higher Bebington, Wirral

How much? £5 for half a book, £10 for a full book. Dabbers on sale for £1 too. Raffle tickets available as well.

Comment on here or drop Sarah an email if you want to join in the fun!

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Charity Race Afternoon

Dock AFC Race Afternoon

The Dock AFC are kindly hosting an afternoon ‘at the races’ in aid of the Spider-Ede Appeal. All proceeds from the event will go to the appeal fund and help Edie to continue receiving her essential life-saving treatment.

Event Details

Where?
St. Joseph’s Centre,
Greenbank Road,
Birkenhead.
CH42 7JY
When?
Sunday, April 15, 2018; First race starts at 2:30pm
How?
Turn up on the day and place your bets before starters orders.

The Dock AFC Charity Race Afternoon

The Ultimate Football and Sport Quiz!

The Ultimate Football & Sports Quiz - Friday 9th March 2018

What: The Ultimate Football & Sports Quiz
When: Friday 9th March 2018, Doors open at 7pm, Quiz starts at 7.30pm
Where: Poulton Victoria Social Club, Wallasey

£50 per team (max 5 people per team)

Cash prize and raffle prizes including:

Signed Everton FC Rooney shirt
Signed Liverpool FC shirt
Signed Liverpool FC mignolet shirt
Signed De Gea gloves
Signed Masher glove
Signed glove by all the Smith brothers
Signed Sale Sharks shirt
Treatment by Genpire
2 hospitality tickets for Manchester United FC with travel
2 hospitality tickets for Fylde Fc
4 ball at Pennant Park
4 ball at Leasowe
10 driving lessons with Chris Kelly
60 minutes of sunbeds
Cut & Blow Dry
Nails
Plus more to follow.

£2 per strip or 3 strips for £5.

 

The Ultimate Football & Sports Quiz - Friday 9th March 2018

Ede-Fest, The Boot, Liscard

Ede Fest Poster

What: A family friendly, fun filled day! Children’s entertainment and mascots all day from Reesey’s Events. Special guests braving the shave at 5pm. Live entertainment. Visit from Mr Tee, live music, arts & crafts, soft play area, bouncy castle, face painting, visit from Kieko and friends, raffle.

When: Saturday 24th February, from 12 noon

Where: The Boot, 55 Wallasey Road, Wallasey, CH44 2AA

Ede Fest Poster

LFC Legends Night, Anfield

We’re delighted to announce a special event with all proceeds for Spider-Ede Appeal on 13th April at Anfield Stadium, Liverpool

LFC legends Mark Wright & Jan Molby will give stories from their time as professional footballers as well as a Q&A.

Guest performance of viral hit “We’ve Got Salah..” by Corks biggest Liverpool fan Kevin Murphy aka Richy Sheehy.

There’s a live band, disco & some incredible auction/raffle prizes 🙂

We also have the European Cup & your ticket purchase includes a photo with the cup! Tickets on sale now via Eventbright.

All money raised going to Spider-Ede ❤️

liverpool-legends

Higher Bebington Juniors FC: Spider-Ede Football Tournament

Higher Bebington Juniors FC are hosting a football tournament for parents and coaches from various clubs from across the Wirral supporting the Spider Ede Appeal.

The parents and coaches of Higher Bebington Juniors FC are hosting a friendly football tournament, at Bebington High Sports College, on Saturday 27th January for coaches and parents from Higher Bebington Juniors FC and other clubs from across the Wirral.

Teams will compete for The Spider-Ede Cup and, as Edie loves Super Heroes, all teams/officals/spectators are encouraged to dress up in fancy dress to show their support.

The organsers are looking for donations and sponsorship for those taking part in the tournament – which will include dads and coaches from a number of local football clubs across the Wirral including:

⚽️ Higher Bebington Junior FC
⚽️ Glenavon
⚽️ AC Hoylake
⚽️ Wallasey Wanderers
⚽️ Birkenhead Youth
⚽️ Shaftes
⚽️ Vauxhalls
⚽️ Cammel Lairds

This is such an important appeal for Edie, raising money for her treatment in Mexico… We want to raise as much money as possible for the Spider-Ede Appeal with the aim to help them reach their target. I know they’d be thrilled with any donation that anyone can spare.

Mr Tee will be there, with his famous ice creams, donating and helping to raise as much as possible for Edie; there will be Spider-Ede badges for sale; super hero face painting for both kids and adults alike, and much more. Please stop by to show your support for their tremendous efforts!

The club has set up their own Chuffed donation page, which links directly to the main appeal page so that all participating teams can pay their registration fees – and any additional sponsorship which is very welcome: Higher Bebington Jrs FC Chuffed Page.

Event Details

Where?
Bebington High Sports College,
Higher Bebington Rd,
Bebington,
Wirral
CH63 2PS
When?
Saturday, January 27, 2018; 1pm-5pm.
How?
Turn up on the day for some fun for all the family, entry at the gate is £1 for adults and 50p for children. Donations can be made on the day, or at any time via the Chuffed appeal page (above).

‘Liverpool One Big Fundraiser’ with live entertainment

On Sunday 28, January we’ll be in Liverpool One from 11am to 3pm with our buckets doing collections for our Spider-Ede!

This will feature awesome live acoustic performances from some of the best singers in Liverpool … you really don’t want to miss hearing these guys perform:

  1. Marc Kenny 11.15-12.00
  2. Dan Brereton 12.00-12.30
  3. Jade Thunder 12.30-1.00
  4. Ethan Allen 1.00-1.30
  5. Georgie Hill 1.30-2.00
  6. Marc Kenny 2.00-3.00

If you’re out and about in town shopping, or even at work, pop along and say hello to us! We look forward to seeing you all!

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