The Spider-Ede Appeal

Raising funds and awareness of DIPG

Donate
Facebook
Twitter
Instagram
YouTube
Merchandise

Search for:

Menu

Home
About Pages +
News & Events
Fundraising
Upcoming Events
Contact Us
Thank You Pages +
Merchandise +
- Purchase Merchandise
- Photo Gallery

Christmas Ede at the Mad House

Posted on December 27, 2017 by Spider-Ede Leave a comment

Our Christmas Ede party was a roaring success! Thank you so much to Jessica Edwards of the Mad House in Bebington, and all of the amazing super heroes who helped! A massive £2040 for Edie’s appeal was raised!

Our little Spider-Ede certainly enjoyed herself and also helped drawing and announcing the raffle prize winners!

Share this:

Click to share on Twitter (Opens in new window)
Click to share on Facebook (Opens in new window)
Click to share on Google+ (Opens in new window)
Click to share on LinkedIn (Opens in new window)
Click to share on Pinterest (Opens in new window)
Click to share on Pocket (Opens in new window)

Like this:

Like Loading...

Related

tagged with christmas, party, Wirral

Fundraising

Leave a Reply Cancel reply

Enter your comment here...

Fill in your details below or click an icon to log in:

Email (required) (Address never made public)

Name (required)

Website

You are commenting using your WordPress.com account. ( Log Out / Change )

You are commenting using your Google+ account. ( Log Out / Change )

You are commenting using your Twitter account. ( Log Out / Change )

You are commenting using your Facebook account. ( Log Out / Change )

Connecting to %s

Notify me of new comments via email.

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Donate Online

Upcoming Events

Christmas Party

To view our full calendar of upcoming events, visit our Upcoming Events page.

Other ways to Donate

The Spider-Ede Appeal – DIPG Awareness

The Spider-Ede Appeal – DIPG Awareness

Latest

Recent
Popular
Comments

Update – December 23, 2018 at 04:06PM
December 31, 2018
Update – December 12, 2018 at 12:25PM
December 17, 2018
Visiting Santa at the Craft Fair
December 1, 2018
One Month On
November 23, 2018
Edie’s Celebration of Life
November 19, 2018

Running for Edie
January 3, 2018
Buy a Spider-Ede Bracelet
December 22, 2017
New YouTube Channel
January 2, 2018
Race at your pace challenge
January 1, 2018
Sycamore Brew Beer Run
January 6, 2018

Lucia aguiñaga Rodríguez on Fly High Edie May
Lynn on Update – 21st October
Final Call for Spider-Ede’s Ball Tickets | The Spider-Ede Appeal on Spider-Ede’s Birthday Ball
Postponed: Greg’s Sponsored Climb | The Spider-Ede Appeal on Heroic Endeavours
BEZ on Spider-Ede Rocks!

Follow The Spider-Ede Appeal on WordPress.com

Upcoming Events

No upcoming events

Instagram

Sometimes it’s the small things ❤️ Sorting through the piles of envelopes & leaflets that we have just left at the side when they’ve been posted and come across this. Almost missed the little message. We don’t know this person, had no idea he knew us. If anyone knows Jack that delivers for amazon in the Wirral area please thank him and let him know this made us smile. Jack might not have said this to us if we had been in and opened the door. We often see people looking at us not knowing what to say or if they should say anything at all. Please don’t ever be afraid to speak about Edie, tell us you are thinking of her or of us. She is not a stigma, she still is and always will be our daughter ❤️💙 to know that people are thinking of her means so much. If you can be anything, be kind. You might just change someone’s day completely. Thank you Jack, you didn’t have to write this but it was very thoughtful, especially from a complete stranger ❤️🙏 #DIPGAwareness #BeKind #Love #Kindness #ChildhoodCancer #CancerSucks #DIPG

Exactly a year ago today. Driven by love and desperation. Our little family of 5 flew 5000 miles away from home in search of hope. We didn’t know then that we would be flying home after losing Edie to this Monster 💔💔 We had to hope that something could save our baby. Never wanting to just accept what Doctors had told us, prepared to fight and do anything we could to give her a chance. 💪 DIPG is a high grade brain tumour that develops mostly in children aged 3-10 and has the shattering prognosis of up to 9months. 9 months to make memories, with a beautiful child you brought in to the world, have been watching grow up, and never imagined that would be cut short at 4 years old 😢 Edie was normal, happy, seemingly healthy 2 year old until summer 2017 when she started getting headaches and became increasingly emotional. She was diagnosed with DIPG 30th November 2017 after a precautionary MRI scan. We had 11 months with Edie from diagnosis, but it was a rollercoaster. Her fight and bravery made us so proud and she raised so much awareness, touching so many hearts❤️ We have been struggling during the festive season, our first without our girl. Please give us a little more time and we’ll be right to it again. Thank you for all of your well wishes, love and constantly having us in your thoughts. We need it and appreciate it🙏🙌 We wish you all a healthy and peaceful 2019

What do you give a child that isn’t physically here anymore? 💔🎄🎁 Edie has a bench and a tree in our local cemetery for us to visit her. We have painted a #SpiderEdeRocks with her favourite movie characters and on Christmas day we’ll put it near her tree. We hope when people see it they remember or learn a little bit about our girl, who she was, what she likes ❤️💙 Our SpiderEdeRocks are to raise awareness of DIPG and of Edie’s personal fight, they will forever be her legacy. If you want to help us out search for the Facebook group #SpiderEdeRocks and get involved. #RememberMe #Cancer #DIPG #DIPGAwareness #CancerSucks #PediatricCancer #ChildhoodCancer #HomeAlone #Ratatouille #SpiderMan #Beethoven

The staff and parents at Edie’s nursery Park Wood Private Day Nursery and Forest School have been so supportive of our family this last year.🙏 We received this photo of some of Edie’s lovely nursery teachers. Each of the staff at nursery have personally gone out and bought 2 extra presents whilst doing their Christmas shopping, one for Niamh and one for Len ❤️💙 Every time we take Len into nursery we get to see a beautiful memorial for Edie outside, set up by the staff and children, including Edie’s friends👭👬 They have a memory book inside the hallway and anyone attending Park Wood can write in there. We regularly stop to look through the pages, so please keep leaving us little notes. Thanks to little things like this we have faith our girl will never be forgotten 🌟 Park wood, along with Niamh’s school, our friends and family have all gone above and beyond to help us get through this time of year. More than we would ever have expected 🙏🙏 Thank you all so much, this has taken great pressure off us and we haven’t had to think about Christmas too much.

We hadn’t yet posted all the details of Edie’s service. We weren’t sure if it was appropriate or would it be a bit “weird” to be telling people. But, we now know people have been wondering but not wanting to ask. As a family we carried Edie to the crematorium ourselves immediately after her service in Mexico. Mummy and Daddy holding the sides and Wonder Niamh came forward, holding the front and helping to carry her sister ❤️💔👭 It’s thanks to Niamh that we can look back on these moments and see beauty and love in such sadness. When choosing Edie’s urn, we liked a pure white box, but Niamh said “no, Edie can’t have white, she gets too messy” 🙈 she knows her sister well. So here she is, after flying home on our knees, together the whole time, Edie now stays at home with us ❤️❤️ #AlwaysOurBaby #ForeverOurBaby #Forever4 #DIPG #DIPGAwareness #Cancer #PediatricCancer #CancerSucks

Yesterday evening the real Santa from Story Time with Santa made a special visit to our home 🎅🏻❤️ As parents Christmas is proving difficult for us after losing Edie, she absolutely loved this time of year and we know she’d love us to still have a magical time. Especially her brother and sister. We had every intention on trying to take the children to see Santa but knew that it was going to be emotional. Then, one of our superhero friends Yvonne swooped in to save the day again! She arranged for Santa to come to us to take away a bit of pressure and help us avoid any crowds. Well, Santa was truly incredible! Niamh hasn’t stopped talking about it, he read a lovely story and although Iron Len ran riot he managed to get him to join in too! Next year I really hope we feel less pain because we would love to be able to visit Santa at one of his wonderful shows! Thank you Santa! 🙏🎅🏻

Still a few tickets available ❤️💙

This 5 year old girl lost her little sister to DIPG not even 2 months ago. Being only 13 months apart in age they weren’t just sisters, they were best friends. Niamh is so brave and remembers her sister everyday. When her class had to paint decorations for their class tree, Niamh chose not to use the class colour of green but asked if she can do a red and blue one for Edie as well as her own one. So Edie’s angel decoration now sits at the top of the class tree, sparkly and beautiful just above Niamh’s all red one. ❤️💙 The staff, parents and children have been incredible at Church Drive. We have such a great support network, from sat crying in the car and parents I don’t know coming up and hugging me (thanks Julie, I did need it) To raising money to help us out over Christmas while we try and pick up the pieces. This community is part of the reason that I can say I think we’ll be ok. We miss Edie so much, DIPG took her from us far too early and we cry everyday. But if we look around there is also so much love that we can’t not smile even through the pain. Keep being kind to others, you never know what they are going through 💔

🎄Come and join the Christmas fun!⛄️ For just £7 per child there will be a Santa visit with a gift each, disco, children’s buffet and so much more! Don’t forget to dress to impress, you could win the Christmas outfit competition!! 🎉🎁 ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk Text EDIE03 £? to 70070 #Fight4Edie #DIPGAwareness

Tags

300 alder hey anfield ann summers appeal avengers awareness baking bingo birkenhead Birthday Ball bracelet breaking news burlesque cake cancer cartoon charity child friendly christmas collecting crafts dipg donation donations edie family family friendly featured fight4edie food funding Fundraising gift head shave hospital icu interview ladies night lfc liverpool madhouse media medical merchandise mexico monterrey mri scan music nativity News pantomime party press radio raffle Research running scan results school shopping social media softplay spider-ede spider-man sponsored sports superheros thank you tranmere treatment update video vlog Wirral

Follow The Spider-Ede Appeal on WordPress.com

Please note that as an Amazon Associate I earn from qualifying purchases.

Post to

Cancel

Privacy & Cookies: This site uses cookies. By continuing to use this website, you agree to their use.
To find out more, including how to control cookies, see here: Our Cookie Policy

%d bloggers like this: