The Spider-Ede Appeal

Raising funds and awareness of DIPG

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Upcoming Events

Bake 4 Edie
Christmas Craft Fair
Christmas Party

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Christmas Craft Fair, 1st December
November 4, 2018
How is Niamh?
November 2, 2018
Update – October 29, 2018 at 07:31PM
October 29, 2018
Update – October 23, 2018 at 02:35PM
October 23, 2018
Fly High Edie May
October 23, 2018

Running for Edie
January 3, 2018
Buy a Spider-Ede Bracelet
December 22, 2017
New YouTube Channel
January 2, 2018
Spider-Ede Appeal Charity Evening at the Gladstone Theatre
March 29, 2018
Sycamore Brew Beer Run
January 6, 2018

Lucia aguiñaga Rodríguez on Fly High Edie May
Lynn on Update – 21st October
Final Call for Spider-Ede’s Ball Tickets | The Spider-Ede Appeal on Spider-Ede’s Birthday Ball
Postponed: Greg’s Sponsored Climb | The Spider-Ede Appeal on Heroic Endeavours
BEZ on Spider-Ede Rocks!

The Spider-Ede Appeal – DIPG Awareness

The Spider-Ede Appeal – DIPG Awareness

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😵Wow!!! 😵 The amount of supporters that would like to celebrate Edie's life with us really is so lovely, we are overwhelmed ❤️👼🏽❤️ Due to the interest, we have had to make this a ticketed event to be sure our nearest and dearest have the chance to be there and unfortunately, there is no longer any availability.🎟🎟 We do have a cancellation list for those that would really like to come along and be with us all. Please, if you do have a ticket and can no longer make it or you have a day and night ticket but can only attend the evening or day, do let us know so those who would like to be there at that time can join us.🤞🏽 To be on the cancellation list, or to cancel / change your tickets, please contact Kirsty Stading or Kelly Tyrer. ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk Text EDIE03 £? to 70070 #Fight4Edie #DIPGAwareness

Last week we travelled back home. It was so hard, we should of had 5 tickets, 5 seats. 3 children, our hands full. Instead we were lost, travelling in a daze, numb. One of us, a part of us is now physically gone forever. 💔 We are “home” but what is home? This last week has been a rollercoaster in itself. Our house has been a safe place of familiarity yet torture, full of memories. Beautiful, painful memories. 💔 We have to take things slowly at our own pace. With so many wonderful people we want to see but finding it so overwhelming. 💔 There is a long road ahead, grieving is a process. This is what DIPG did to us, to our family. 💔 This is what DIPG does to around 40 families a year in the Uk. Something has to be done. ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk Text EDIE03 £? to 70070 #Fight4Edie #DIPGAwareness

🎄Come and join the Christmas fun!⛄️ For just £7 per child there will be a grotto with a gift, disco, children’s buffet and so much more! Don’t forget to dress to impress, you could win the Christmas outfit competition!! 🎉🎁 ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk Text EDIE03 £? to 70070 #Fight4Edie #DIPGAwareness

To continue with Edie’s legacy we will be raising funds with The Bradley Lowery Foundation for the research of DIPG and also offering support to North West families that go through the heartbreak and devastation that we have. Our next event will be our Christmas Craft Fair, including Santa’s Grotto and a car wash (weather dependent) contact Nanny Hazel or Lorraine on the emails on the poster for any more information. ❤🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk Text EDIE03 £? to 70070 #Fight4Edie #DIPGAwareness

How is Niamh? She’s a very strong and brave girl. We owe a lot to her, along with Len she gets us through each day. Bringing smiles to us in the darkest hours ❤️ We truly wouldn’t know what to do, what to live for without them. She understands so much, knows when to cheer us up and give us a hug 🙏❤️ But, there are moments that she herself needs these hugs, needs her questions answered. We find her sitting quietly, ask her if she’s ok. And she asks “Where is Edie?” “Why did she have to go to heaven last week?” “Where is heaven?” “Is heaven nice?” “I miss her playing with me” These are questions a child shouldn’t have to ask about their sibling, that parents shouldn’t have to try and find the right answer, and struggle to answer without completely breaking down 💔💔 But, she’s ok. We are all in the process, we don’t leave her out, this is her life too. Just minutes after Edie left us I went out to speak with Niamh. I explained how we wouldn’t see Edie again. “But Mummy, ‘course we will” “How?” “Well we all have to die and go to heaven” These are wise words from a 5 year old❤️ #DIPGAwareness #EndDIPG #DontForget

Dia de los muertos or the “day of the dead” is a Mexican holiday focused on gatherings of family and friends to pray for and remember loved ones who have passed over. Traditions include building altars called ofrendas, using photographs, decorative skulls, candles, Mexican Marigolds, the favourite foods and drink of the departed, and visiting graves with gifts. We have been asked by a number of our friends here in Mexico if they have our permission to include Edie in their altars, to remember her. We can only ask in turn that Edie will be remembered every year, that she will have a place on the ofrenda forever ❤️❤️ Such a wonderful and meaningful holiday. With every ounce of respect for this Mexican tradition we will be creating our own ofrenda, with Edie in the centre. The greatest part of Edie’s fight was here in Mexico and the people here will always have a piece of our hearts 💙🕷❤️ JustGiving.spider-ede.org.uk www.spider-ede.org.uk Text EDIE03 £? to 70070 #Fight4Edie #DIPGAwareness https://m.facebook.com/thespideredeappeal/

This time one week ago we were watching our baby take her last breaths. Waiting for her to leave us behind. One week of so much pain. We just want to hold you again, feel you, smell you, listen to your infectious laugh. We miss you so much Ede, it hurts 💔💔💔 You were an angel put on this Earth, our perfect angel 😢 #Remember #DIPG

Thank you Ana Elena Estudio for capturing Edie’s service in photographs. It’s emotional to look through but they are beautiful and we will treasure them forever 💔🙏😢 ❤️🕷💙 JustGiving.spider-ede.org.uk www.spider-ede.org.uk Text EDIE03 £? to 70070 #Fight4Edie #DIPGAwareness

We would like to thank everyone from the bottom of our hearts for the support since the news yesterday💔 Edie really did make her mark and leaves a legacy. We will be having a memorial in Monterrey, Mexico today and will be planning Edie’s celebration of life for when we are home. If you would like to carry out a candlelight memorial in Edie May’s honour we ask for it to be around the time we will be having her service, please light a candle at 7pm UK time ❤️💙

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