Update – September 21, 2018
Here we go again 🎢🎢 Wednesday night Edie graduated from the ICU and made it to her own regular room where we can stay in with her 24/7 🎉🙌
She has been training to breathe for herself having periods without assistance and she’s been doing great!
Edie has been breathing on her own with oxygen since 2.30pm yesterday. 🙌💪 On to today. The Doctor sent Edie for a CT scan to check her new shunt is working.
It’s not. 😔
Our girl needs surgery again! She’ll be going in to theatre tonight. She’s in a better clinical condition than last week with the pneumonia cleared up more but it is still a risky procedure.
Last week you all got her through, she had so many prayers and positivity sent! So we ask you once again to send her everything you have 🙏🙏🤞🤞
UK Text EDIE03 £(amount) to 70070